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I've had MRSA for almost four months now.
Started by Joseph in NorCal
Posted: May 2, 2007 at 04:35
Hi all. Great board. I am here because I thought I would ask if anyone could tell if they have experienced something similar to what I am going through. In January I got sick fast with an abcess on my testicular region. Most pain I've ever had, they had to cut it open and drain it. I was in the hospital for a week, and at home with an IV for something like two weeks extra on vincomyacin. I've been on Rifampin several times, because I've had two outbreaks on my skin since this. Originally it was most likely a spider bite that got infected, on my upper leg. But now I am just coming out of the second batch of rifampin and doxycycline (I'm allergic to Bactrum) since being in the hospital. In other words I've been on antibiotics since mid January, off and on. I am worried that I still have it. I am noticing some bumps popping up still so I will probably have to go see my doctor again. I am very worried that this thing will never go away. The antibiotics just don't seem to be taking and I keep picturing worst case scenarios like going back to the hospital because of another abcess forming.

I've been looking on the net but there doesn't seem to be any way of telling how long you are going to have MRSA if you have it. The randomness is driving me crazy. Has anyone had a similar experience? If so, please tell me how long it took you to get rid of it altogether.
Re: I've had MRSA for almost four months now.
Reply #1 by LindaA
Posted: May 2, 2007 at 13:52
Unfortunately, the sooner you can deal and somewhat accept the "randomness" of MRSA, the better your emotional health will be. There's no true way of knowing once all the blood tests come back infection free so to speak that it still isn't laying dormant somewhere in your body, waiting for the right opportunity to flare up again.
Most of us here on this forum have dealt with, or is still dealing with MRSA, on average at least 1yr all the way up to 4 yrs. I myself dealt with MRSA in the blood from 5-05 until 10-06. During that span I had nearly 30 weeks of IV Vanc twice daily, 4 picc-line placements, and 5 surgeries, trying to finish what was origionally started as placing tissue expanders for the purpose of breast reconstruction.
The best thing you can do for yourself is to focus on starting to re-build your immune system, as this is the only way to keep MRSA in check once you aquire it. Please check the topic FAQ about MRSA. On this I tried to answer the questions that most newbies have and a 4 step regimen to follow to rebuild your immune system. The quicker you get your immune system strong and healthy, the quicker you'll be rid of the symptoms of MRSA and be able to keep them in check. Good Luck LindaA
Re: I've had MRSA for almost four months now.
Reply #2 by Joseph in NorCal
Posted: May 4, 2007 at 07:17
Thanks, both of you. Well, I'm getting sores again so I'll be seeing a doctor on Saturday if I can. My number one fear is the immunity issue, so this does help me out a lot. I have been stressing over this and I've been told that doesn't help things, our bodies and stress are quite linked. The truth is the more antibiotics I take the more I feel not myself. The rifampin has affected me with depression and anxiety. At first I thought it was in my head but now I'm sure. It's only when I'm on it that these things become heightened. So I fear going back on it but according to all of my research it is necessary for MRSA treatment, in combination with any number of things since I'm no longer on the vincomyacin treatments. I wish there was an alternative, but I'm going to take it if they tell me to again.

Really, this site is a very big thing for me now. I have been feeling so freaked out, and guilty for having it this long. I don't know why I feel that way, it's just talking about it to friends puts them in disbelief, everyone is shocked I still have it. So thank you for your advice.

Re: I've had MRSA for almost four months now.
Reply #3 by LindaA
Posted: May 4, 2007 at 16:21
Stress goes a long way in suppressing your immune system. And pain will affect your blood pressure so don't be a martar. Don't try to tell yourself that you're handling it and don't need pain pills. I tried that after the last surgery and at that point I was also an emotional wreck. I was taking the lor-tabs and still in alot of pain but told them that I was fine. Well, when they took my blood pressure, it was 155/125, so obviously, I wasn't handling the pain like I thought I was.
Also, don't wait until you're off antibiotics before you start using the suppliments to re-build your immune system. The more antibiotics we have to take for the MRSA, the weaker our immune system becomes. You may not make any headway while on the antibiotics, but at least you won't lose anymore ground either. The suppliments, especially a good super B complex if you're having depression and anxiety will help you tremendously. And if it's very bad to where you fear you've lost it completely, let them give you something for a few months to get you thru the worst. After my last surgery, I completely lost it and didn't feel that I could take anymore. They gave me a prescription for Zanax, only a 5 mg tab, to help me get thru that and accept what I had to face. I didn't want to have to depend on any type of drugs, but sometimes it's necessary in order to get your life back on track. I wound up taking the Zanax for 3 months.
As far as your friends go, I would try to educate then a little on just what community Aquired MRSA is and how easy it is to become compromised and how easily it is to spread. Then maybe they'll realize how fortunate they are to not have to deal with MRSA themselves, and be a little more supportive of you in the process. Keep us posted, LindaA
Re: I've had MRSA for almost four months now.
Reply #4 by Joseph in NorCal
Posted: May 7, 2007 at 07:48
Once again, thanks for all the advice. Tomorrow Monday afternoon I meet with my doctor to discuss the possibility of a further surgery which I fear for more reasons than I can name. I have not talked about my anxiety or depression to any doctors, I was afraid to admit it. I DO have a lot of support from my friends, it's just that no one told me to expect ANY of this. I'm pissed at the fact I saw dozens of doctors in and outside of the hospital and no one told me to look out for the outbreaks which later occurred. I thought I had spider bites and was freaking out over the fact that they were all over my body...I didn't make the connection AT ALL until I saw a doctor.

I was not able to find a lot of the stuff in the FAQ. Like the Four brand liquid. I was able to get a mens multivitamin, 1000 mg Vitamin C, garlic pills, a really good probiotic pill, and echinacea. Along with green tea. So that should help with the immunity.

I wish someone had prepared me, and I wish someone professional had been honest but they all avoided talking about the possibilities so it wound up all being unexpected and thus I've had anxiety attacks a number of times. I don't feel normal. I don't want to be a wah wah self victimizing ass about it, either. Maybe I will ask for an anti depressent, even though I never thought I would have to do so.

Oh, and to answer your question I've been scrubbing the hell out of my body every day with Hibiclens. I also have muciporin gel. I guess I'll update when I have some further news.
Re: I've had MRSA for almost four months now.
Reply #5 by Ginnie
Posted: May 7, 2007 at 18:08
Joseph, I too have been dealing with MRSA since October, hospital, home care, er trips..break out monthly but since starting immunity building last two were very small! Just wondering if u drink wine?? I am allergic to the Bactrim too and it gave me a rash and severe anxiety...Dr. said it is the sulfa..about the same time I found that out my husband and I discovered wine and would have a glass or two at night..My anxiety started getting worse even though off the bactrim and then started having panic attacts..thought I was going crazy..after one late night a few split bottles of wine I had anxiety the next day and night to the point of almost passing out..come to find out I can't take the sulfites in on anxiety meds to get through poisoning myself for 4 months..also if you go to Google and put in your prescription name followed by side effects their is a site called ask a patient..found anxiety is side effect very common with Bactrim although not listed by the drug company...Good luck Ginnie
Re: I've had MRSA for almost four months now.
Reply #6 by Jimbo
Posted: May 10, 2007 at 04:47
I would just like to let you know that all these feelings you are experiencing are normal. Unless you have been through this yourself there is no way to understand the feelings of isolation, panic, and guilt that we all have dealt with. This disease not only affects your physical health but your psychological, emotional, and economic health also. It is true that the Rifampin does have the side effect of anxiety and if you are taking blood pressure medication it will interfere with the effects of your anithypertensives. Remember these are very powerful drugs with are dealing with that have wide variety of side effects Also for anyone on Zyvox let your Dr. know if you are on antidepressants because of the serious drug interactions that can be fatal. As to why the Dr.s are so vague about treatment, I think it is because they really don't know much more than we do. This is an ever evolving bacteria that changes with every treatment we receive. The most important thing is to seek medical attention at the first sign of an outbreak. And don't worry about what anyone else thinks, this is your life and sanity you are talking about.

Good luck from a fellow sufferer.
Re: I've had MRSA for almost four months now.
Reply #7 by Abi
Posted: September 25, 2013 at 16:19
High doses of vitamin c work for me.6000 MCG
Re: I've had MRSA for almost four months now.
Reply #8 by willie
Posted: April 21, 2018 at 22:57
i know im way late.. but once you have MRSA, its with you for life, its a lifestyle not a skin allergy. It lies dormit waiting for a wound, cut, scrap, etc.... enters the body and starts doing damage. Keep on top of wounds ASAP. Soaps such as DEFENSE for the UFC cage fighters who have MRSA contact, dries out and fends the best against from my experience. Doxy, Bactrum, and of course unaffordable Linezolid, and then IVs Invanc n Vanco. I went thru the third nut infection first, then my chest twice, then my neck, THEN my foot (blister) which turned into an amputation of my fifth digit and bone. Serious shit. GREAT Luck to ya.

Re: I've had MRSA for almost four months now.
Reply #9 by Bob Anderson
Posted: April 22, 2018 at 03:15
willie -

Actually, MRSA doesn't have to be a lifelong disease as there are alternative herbal folk remedies that still kill MRSA even in this age of antibiotic resistance. Please read the Garlic Success Stories thread in this forum and if what you find there is interesting to you, read my garlic and garlic water threads in this forum and learn all about how and why these ancient treatments still work where modern antibiotics have failed.

Good luck to you.

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