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mrsa in north dakota
Started by kathy
Posted: February 21, 2005 at 01:50
i have been reading the other letters on this website and have been reading information everywhere and i have come to conclusion that the doctors do not really know how to get rid of mrsa. why do we continue to get infected after treatment? why bother with the treatment if it is just going to keep coming back? in oct 2003, i had what i thought was a spider bite on the back of my leg behind my knee. it itched and i scratched. it got infected and turned into quite a bump on the back of my leg.thinking it was just a boil, i treated it at home.i soaked it in warm water and kept it covered until it opened. once it opened, i seen it left a hole in my leg and i had 2 more little sores below it. i went to the doctor, who in turn, put me in the hospital in isolation. they treated me with vancomycin for 2 days while waiting for cultures to come back. cultures came back as strep and staph, so he sent me home with some presriptions to pick up at the pharmacy. about a week after my medication was done, i got another spot on the back of my arm. this one came back as mrsa, but he did not treat this as it went away on its own. about 6 months later, i got another sore next to my belly button. this also came back as mrsa, but i can't remember how this was treated. in january 2005, i went in with another sore on my side, which came back as mrsa again.he treated this with vancomycin 2 times a day for 10 days. now its been about 2 weeks since i completed this treatment, and i'm afraid i have another one,but i do not want to go in because i'm to the point where i think it is pointless.i am tired of the cultures and all the poking for iv's and taking blood to check the peak and trough and everything.i take the medication when i am suppose to, i do everything they tell me to do and then some(the doctors do not tell you a whole lot-i've learned alot more from the internet-maybe it is because they are so rushed between patients that they do not have the time to explain everything to you,i do not know)and it still keeps coming back. i do not know why i can not get rid of this and it is driving me crazy, not to mention, my husband is getting pretty angry at the fact that the doctors are not treating it successfully. he thinks it is the doctors fault, but i don't know. i have read about alot of other people that keep getting mrsa again and again and they don't all get treated from the same doctor, so i really don't think it is my doctor. i think it is just doctors in general. they do not know what to do with it. if they did, we would not be researching this ourselves and writing about our experiences on this website, would we? we would of been treated for the infection,it would of went away and we would of forgotten about it.
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Re: mrsa in north dakota
Reply #1 by Bonnie
Posted: April 5, 2005 at 17:10
I know that it is frustrating! I did not know what I was dealing with, but have had it for 3 or more years now and it is getting consistantly worse and is changing how it starts and how it responds to treatment. I recently saw an Infectious Disease Specialist. I would recommend asking for a referral (if you haven't already done so). True, there is not much you can do. Anyone you are in close contact with can be a carrier and not know it. All parties in the household can benefit from using treatment with Bactroban in the nasal passage. Even animals. I may be Bactroban resistant - we are going to do the test in about a week & a half. This disease is horrible, I don't know about you but I feel like Leision Girl! I feel like I need to be secluded from everyone. Unfortunately, I am a single mother and don't have the luxury of not working. If this continues to get worse I don't know how I will be able to keep my job. Good Luck to you and be patient with your husband. Remember, it is hard to sit back and watch someone you love go thru something like this. It think it almost hurts more when you don't own the pain.
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Re: mrsa in north dakota
Reply #2 by beverly
Posted: April 12, 2005
me and my sister have staph infection and just had to the boils lanced off and packed it really did hurt can you get anxiety from it
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Re: mrsa in north dakota
Reply #3 by nyker
Posted: May 10, 2006 at 07:19
I am so sorry about your situation. I know what you are going through. It is so scary, frustrating, and physically painful to have mrsa.

Here's some hope: My infectious disease specialist INSISTS he has had patients (several) decolonize, or it's at least never come back. Please read my information under "My Infectious Disease Specialist Says". I didn't have an outbreak for what I calculated was 12 months, but it was really 14 months. I've now been free from MRSA for 3 months (knock on wood) so far.

I'm doing the Phisohex and the bacitricin religiously (described in my post). The specialist said one patient was mrsa free for 6 YEARS (Wouldn't that be great!!!), but it came back because the patient stopped doing this regimen.

So maybe you should try this too--and definitely, demand to see a speicalist. Also----as I state in my post, my specialist would NOT give me vanco because he said with skin mrsa, vanco can't decolonize you. Maybe that's why your mrsa still came back. Get your phisohex and bacitricin. Let's try to fight this!!!
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Re: mrsa in north dakota
Reply #4 by Linda
Posted: May 10, 2006 at 13:59
I truly understand what you're going thru.It got to the point with me and my husband, that I was basically going thru everything by myself with no support from him at all. He blamed me for my situation because I unknowingly compromised myself at work(nursing home) and contracted it thru a small incision. And it was following an elective surgery I chose to have, but didn't HAVE to have. Anyway, I figured out that I'd had from 4-7-05 til 4-1-06 5 surgeries, 3 pick lines, and over 25 weeks of IV Vanc treatments twice daily. Right now I appear to be MRSA free, but I don't think we ever know for sure. The best thing you can do to protect yourself from re-infection, is to re-build your immune system, then maintain a daily regimen to keep it at that level of health. You need at least 6000-10,000mg vit C daily, as well as Odorless garlic that has a high level of allicin in it(this is the active constituant that works against infections) a good super B complex, grapeseed extract, green tea in tea or tablet/extract form, and then a product with plenty of phytonutrients in it and a product with probiotics (primal defense is good) and pomogranate juice is good to use. For the past month, i've been using 8oz of pomogranate juice with skim milk, vanilla yogurt, and banana for a morning smoothy. I'm finally getting my strength and energy back. I'm a certified natural health pharmacist so if anyone has any questions or would like to discuss anything, my personal e-mail is laasda@terraworld.net. Good luck, and don't give up. Take control of your life by re-building your immune system, and start enjoying life again. God Bless us all, Linda
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Re: mrsa in north dakota
Reply #5 by Tina
Posted: May 23, 2006 at 21:01
Hi I am from ND also and me and my 3 children have all had it for 11 months now. I got it from a c-section at the hospital and passed it on to my twins and 2 year old before they found out what it was. I went in every couple days and said this isnt right and finally i got a dr to test it.that was 4 weeks after I had the babies. I also gave it to my mom who was helping me.If you want to talk email me
trinity_user2@hotmail.com
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Re: mrsa in north dakota
Reply #6 by M
Posted: May 23, 2006 at 21:22
From what I've been reading, Vancomycin does not decolonize a person of MRSA. MRSA colonies can create a biofilm that helps protect them from anti-microbials. I'm not trying to scare anyone, but this is just some information I've found. Also Vancomycin will not kill a colony on the outer surface of the skin. Try something to help decolonize on the outside. You can go the natural route or over the counter antimicrobials like Hybicleanse.
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Re: mrsa in north dakota
Reply #7 by carly
Posted: April 30, 2010 at 15:51
Ask about Daptomycin
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Re: mrsa in north dakota
Reply #8 by S in PA
Posted: May 4, 2010 at 03:21
In Feb I was told I had a staph infection, hosp acquired, from a
procedure i had done. They cultured it and said it was staph not MRSA.
Fast forward to now, I have been thru Keflex, Cipro, back to Keflex
and now finishing Levaquin with no good results. My incision site is
open, draining with blood and pus and very sore. Doctors are now
playing pass the buck with me. 1 surgeon says go to the other, the
other says see the ER, the ER says see the surgeon and so on and so
forth.
I am going back to the ER tomorrow to scream for someone to DO
something. I have had 2 surgeries to clean the site out, and it looks
ok for a week or so and then falls apart.
My joints ache, I am exhausted all the time and sick and tired of
getting the bum rush.
What should I say tomorrow at the ER to make them pay attention and
help me?
Can I insist on seeing an infectious dis spec? what are my rights in
terms of demanding treatment?

I dont think I have MRSA...they never called it that. But what I do
have is resistant to all of the antibiotics they have used on me so
far.
My heart aches for some of your stories. I had no idea this was such a
huge issue :(
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Re: mrsa in north dakota
Reply #9 by S in PA
Posted: May 4, 2010 at 03:23
sorry mrsa in north dakota i meant the above to be a new topic.
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