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mrsa again
Started by tasfira
Posted: June 19, 2010 at 21:19
I've been battling mrsa off and on for about 15 yrs now. Some were bad some were ok, and some didnt really get anywhere at all. I posted here about 9 or 10 months ago because I had a mrsa infection on my left outter thigh that would not stop draining and would not heal. Well it finally did, but left a tiny hole. I have since had 6 more and am on the 7th, which I want to write about now. It started showing last Monday with the pain and the heat, but not size. By Tuesday morning I noticed it was the size of a golf ball and very painful, red, swollen, and I couldnt sit as it is located on my inner left thigh rather high up. By Wedneday night I couldnt take the pain anymore and asked my husband to take me to the hospital. The only thing they did was localize it, make a very small incision and drain about 1/4 of it. They took a culture, gave me painkillers, doxycycline, bactrim, packed it and sent me home. I saw my doctor yesturday(Friday) and he took a look at it and the first words out of his mouth were "You didnt need an ER, you need an OR." He told me they should have taken me straight to the operating room and cut this boil out cause it was so large. So he had his nurse fax the hospital with an ASAP fax to get me in the OR on either Monday or Tuesday to get this one cut out. I was feeling it today, and its not as large as it was yesturday, but still very sore and very painful. And still bigger than a golfball. Too all of you with this debilitating condition, my heart and my prayers go out to all of you. I will try to keep you all updated if I can.
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Re: mrsa again
Reply #1 by LoisF
Posted: June 20, 2010 at 04:04
Hi, so sorry to hear of your latest boil and upcoming surgery. Have you read the post on garlic treatment by Bob Anderson? It might be very helpful to you. You might benefit immediately from a garlic bath. Won't smell very good, but that's the least of your worries. My best to you. Lois
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Re: mrsa again
Reply #2 by tasfira
Posted: July 4, 2010 at 02:06
Well, heres an update. Surgery consisted of nothing more than a local, a drain, another packing, and a dressing. I was under the impression I was going to go into the OR and have this cut out of my leg. I have now had this particular boil for 3 weeks. It has been incised and packed twice now I go back to the doctor on tuesday to have it repacked. They have given me doxycycline again. Second dose in 3 weeks. So far only nausea as a side effect. My main concern is this however, the doctor told me that the boil would be getting softer and smaller as the days passed. I have noticed the opposite. This particular boil is getting bigger and harder. Does anyone possibly know why?
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Re: mrsa again
Reply #3 by Nancy R
Posted: July 4, 2010 at 22:04
Common sense would dictate that the Doxycycline is not working. You need an ID. Stop playing around with doctors who only have a general knowledge of this bacteria. Find a good infectious disease doctor who can put you on the correct protocol. Good luck.
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Re: mrsa again
Reply #4 by tasfira
Posted: July 5, 2010
Nancy,

Believe me, its not for lack of trying to get in to see an ID. I've been trying for well over 6 months now. But with having no insurance and the clinic I go to, everything has to be done by referral. The first referral was made back on February 4th of this year, the 2nd in May, and finally the last one was done the June 28th. I have yet to recieve a phone call or any sort of mail correspondance from an ID. When I go for my follow up appointment on the 7/6, I will ask was the status of the ID referral is, if any. Im sick and tired of being sick and tired all the time. Lets hope we can get something done this time. Thanks Nancy
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Reply #5 by Mom in Calif
Posted: July 5, 2010 at 01:48
What else do you do to help heal the infection, tasfira?

Whether you have pharmaceutical antibiotics or 'natural' antibiotics in your system, you must find a way to increase and maintain blood circulation to the wound itself - otherwise, the medications in your bloodstream will not have a chance to do their work because there is insufficient exposure to the infection source. Hot compresses every three hours, long hot baths so that your skin gets pink. The added benefit will be that topical treatments, such as the garlic bath suggested by Lois or whatever your doctor gives you, will be able to penetrate more deeply into your skin to help heal the wound from the outside as well. It is time consuming and feels old-fashioned, but it works.


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Re: mrsa again
Reply #6 by tasfira
Posted: July 5, 2010 at 02:04
Sorry I forget to mention all this at the beginning. My doctor told me to take sitz baths 2-3 times a day and heating pad 20 minutes 2-3 times a day and the antibiotics he prescribed. Even though it is painful due to where it is located(inner upper left thigh), I do get up and walk to increase my heart rate to help my blood circulate better. I am doing everything my doctor tells me to do, and a little extra at times. As for the garlic, Im allergic and dont keep it in the house. When I finish the antibiotics, I am going back to my yogurt and my probiotics.
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Reply #7 by Mom in Calif
Posted: July 5, 2010 at 03:48
That's good to hear your doctor told you about the baths and applied heat. Oil of oregano capsules might be an alternative to garlic for you - my husband and I both find that oil of oregano helps us 'get over the hump' if we get any skin problems or suggestions that we are catching a cold or whatever.

Since you've been on antibiotics for a while, it might be good to go ahead with the probiotics even while you are taking the medication - spread them out between the doses of antibiotic, it should help with any feelings of malaise or digestive issues. From what I have read in the past year, only a certain portion of probiotics we take actually colonize in the gut and intestines - most shed from the system naturally every day, so taking them in rotation with antibiotics is not much different...

Hope this helps...
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Reply #8 by tasfira
Posted: July 5, 2010 at 13:21
Mom in Calif,

Thank you for for that, I will start back on the probiotics this morning and see if it helps. Again to everyone, thanks for thw support and suggestions.
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Reply #9 by ladyk
Posted: July 6, 2010 at 16:27
tasfira -

A couple of questions come to mind...

When was you last lesion cultured?

What are you doing to 'maintain' topical health?

What are you doing to 'maintain' immune system health?

Are you maintaining a reduced bacteria home environment?

Do you have pre-existing health issues (diabetes, etc.)?

What meds do you take on a routine basis?

ladyk

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Reply #10 by tasfira
Posted: July 8, 2010 at 02:14
Dear LadyK,

I have a little explaining to do before I answer your questions but I will answer them. My last appointment was yesturday. The doctor decided to open up the existing hole and "soften" up the part. Can we say MEGA PAIN? He repacked it, added Bactrim DS for 10 days and told me to come back Friday. Complete bed rest, no bathing, no activity. Oh joy. But if I want to avoid the hospital, Hey, I'll do what I have to.

I also recently found out from talking to my mother, that I had this condition when I was around 3 and 4 years old. My father has this condition so severely that he has these boils ALL over his body and is a very unsanitary man. At least now I know where it came from. My mother left him and moved back down south and I never had another one till I visited him when I was 15. And thats when this nightmare called CA-MRSA for me began. For 2 years I would get boils off and on, then they stopped. After I had my first child is when they came back with a vengence and they have been here ever since getting worse as the years went by, and ya'll know the rest of the story from there.

LadyK, the last lesion was cultured on June 16, 2010. Wash with Hibi 2x's a weeks and recently started decolonizing my nose. Yogurt and probiotics are the only things I can do at this point. I am maintaining an no bacteria home envionment. ALL sheets changed every other day, home hard surfaces sprayed with water/bleach solution, carpets/furniture sprayed with MRSA killing antibacterial spray. I have been diagnosed with Fibomyalgia, chronic migraines, Fibrocystic Breast Disease, and GERD. I am currently taking Topamax, Zantac, Elavil, Ambien, Cymbalta, and Tramadol. Im addition I am also taking Doxycycline and Bacrtim DS and Fioricet. I hope I have covered everything
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Reply #11 by Tana
Posted: July 9, 2010 at 15:11
Hi Tasfira, I found that taking Tumeric the spice in capsule form from any health store helped to dry out lesions,also my IDD told me about Domeboro astringent solution.I mixed it with warm water and brought cheap washclothes and applied it to lesion and in helped to drain infection.I hope its okay to suggest tumeric being its just a household spice. Good luck
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Reply #12 by ladyk
Posted: July 9, 2010 at 18:50
tasfira -

Hi. I was doing some digging into your list of meds, and thought you might find the following interesting. Out of the six meds you listed (excluding antibiotics) four carry the same warning concerning possible interaction with Fioricet . Avoid alcohol.
(Topamax, Ambien, Cymbalta, and Tramadol):


[ MONITOR: Central nervous system- and/or respiratory-depressant effects may be additively or synergistically increased in patients taking multiple drugs that cause these effects, especially in elderly or debilitated patients.

MANAGEMENT: During concomitant use of these drugs, patients should be monitored for potentially excessive or prolonged CNS and respiratory depression. Ambulatory patients should be counseled to avoid hazardous activities requiring mental alertness and motor coordination until they know how these agents affect them, and to notify their physician if they experience excessive or prolonged CNS effects that interfere with their normal activities. ]
Read more…
http://www.drugs.com/drug-interactions/acetaminophen-butalbital-caffeine,fioricet.html

Tasfira, I believe it would be in your best interest to have all your meds reevaluated by a single physician (if this has not already been done). It is important to have discussion with physician to be sure meds are relatively compatible, and evaluate current necessity according to current health~ just to be on the safe side. You mentioned fifteen years dealing with infection, this is a long time of pounding on one’s immune system for the upper hand. Additionally, if I am to speak frankly honest, the meds you ingest would sit me down! Stimulants in the Floricet… and barbiturates in the Ambien, mixed with anti depressants, and seizure medication - with a generous slathering of conventional antibiotics. Please! be careful my dear… maybe its time to wean off to bare bone minimums, replace the rest with safer alternatives.


[Barbiturates are medicines that act to depress the central nervous system, cause drowsiness, and can control seizures.

Stimulants are medicines that act to stimulates the central nervous system.]

As for the MRSA… you and I and most everyone here knows you need to see an ID specialist, what you have to do to get there - would be worth every effort to ensure you are being appropriately taken care of. How is lesion today? If lesion is no better, in my opinion… since your last culture was mid June - it would be important to have lesion cultured again since we are dealing with the resistant factor, strains, etc. you may need a more susceptible antibiotic to gain control over the bacteria.

Hugs & Best Wishes,
ladyk

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Reply #13 by ladyk
Posted: July 9, 2010 at 19:16
Hi Tana -

I have heard the same... and was advised by a medicinal expert in India it is common practice to use turmeric in sitz baths, soaks, and make turmeric paste to apply directly on lesions - in addition to ingesting it by way of putting turmeric into many foods, drinks, and teas.

Since it is used for dyeing too, it will dye your skin as well, which could lead to interesting conversations~

[Main article: Turmeric/Curcumin
In Ayurvedic practices, turmeric has many medicinal properties and many in South Asia use it as a readily available antiseptic for cuts, burns and bruises. It is also used as an antibacterial agent.
It is taken in some Asian countries as a dietary supplement, which allegedly helps with stomach problems and other ailments. It is popular as a tea in Okinawa, Japan. Pakistanis also use it as an anti-inflammatory agent, and remedy for gastrointestinal discomfort associated with irritable bowel syndrome, and other digestive disorders. In Afghanistan and northwest Pakistan, turmeric is applied to a piece of burnt cloth, and placed over a wound to cleanse and stimulate recovery. Indians, in addition to its Ayurvedic properties, use turmeric in a wide variety of skin creams that are also exported to neighboring countries.
Preliminary medical research
Turmeric is currently being investigated for possible benefits in Alzheimer's disease,[6] cancer, arthritis, and other clinical disorders.[7] ]



How are you doing Tana?

ladyk

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Reply #14 by tasfira
Posted: July 9, 2010 at 22:06
Ladyk,

As of today(friday) the lesion has shrunk considerably. Most of the pain is gone, and I am left with a hole half the size of dime that is being closely monitored. I have another same doctor on Monday. Im no longer on bed rest and can shower. I see my regular PCP on Thursday and talk to him about the meds. He has prescribed everything but the Fioricet and antibiotics and see if he can take me off a few things. I will also look into Tumeric since Im allergic to garlic.
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Re: mrsa again
Reply #15 by tasfira
Posted: July 20, 2010
Well, its been a month since I first saw the doctor and the only trace of a lesion is a few steri-strips and a small hole now. Its still tender and sore, and I am still on Bactrim for a few more days. My local pharmacist didnt have the empty capsules for the tumeric so am awaiting them in the post. Been on probiotics 3 weeks and am gaining energy little by little. With all the other issues I have going on the doc was only able to put me on the Ambien and Tramadol as needed and keep me on everything else on a daily basis. But all in all day after day I feel a little better. Hopefully one day soon they will actually find a cure for mrsa and no one will ever have to endure this ever again. I cant thank all of you enough for listening to me rant and rave and complain and cry. I do dearly love you all and keep everyone in my thoughts and prayers.
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Reply #16 by Tana
Posted: July 22, 2010 at 17:37
Ladyk,
I am doing great,still fatigued and aches in joints but I'll take that anyday over a lesion outbreak.Tumeric works miracles,when I had lesions,last one was nearly a year ago,I took tumeric capsule instead of antibiotics and it drie it right up.I take garlic all the time and probiotics and that other thing that I wont mention lol.Any my daughter who moved out recently and brought a house has had Mrsa and as many as 7 lesions at once.She does not care to listen to what she calles my hippie home remedies.She willl learn.She works for a dermatligist and he is against everthing I mention, of course.I am afraid for her,but short of abducting her and treating her myself, there is nothing I can do.Well Thanks again for all your help and wisdom and I hope you are also doing well. Tana
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Reply #17 by Tasha
Posted: July 24, 2010 at 06:20
Hello everyone I have been reading all storys and I am really sorry to hear what everyone is going through.I know where yall are comimg from I think:( I have been battling boils for about ten years or longer now.They are very painful and sometimes hard to deal with.The boils keep spreading it went from the inner part of my thighs to under my arms.I had a four wheeler accident almost four months ago.The four wheeler ran over my legs.I had a small scratch on my leg but from where my leg swelled so bad it opened it up.I have been back and forth to the hospital and have been told that it is mssa and cellulitis but really still confused on whats going on:( Almost four months later I still have a hole in my leg that looks like a spider bite.I went to the emergency room about three weeks ago because of the pain and infection coming from it.The hospital admitted me I was in there for four days with IV antibiotics and was sent home with anibiotics.Still to this day its still open and infection is still coming from it and now the side of my foot has become to be pretty painful.I do not have insurance so its really hard for me to go see a specialist I just really cant afford it right now being a single mom.All the antibiotics I have been on does not seem to help.The sore will seem like its healing and then start looking bad again.I keep it cleaned and take care of it the best that i know how.Its really starting to get scary cause I am clueless to whats going on or what i really have!!I lost my jobs because of it as well,it has really taken a tole on my life.I am in pain so much now til I really dont know what its like to be pain free!!!I really pray for you guys cause this is something I would never wish on anyone!!!

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