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Emotional toll in the family
Started by Mom in Calif
Posted: December 1, 2009 at 17:58
Just a quick thought. I am so appreciative of the internet right now, for the chance to 'converse' with people about this affliction.

I am struggling with the stigma I imagine this carries. I would love to find other families in town that might want to talk about their struggle with this, but so far I have not found a venue. I don't think the other teens at my son's school particularly care what's going on with him, it just looks like pimples, but I worry about the parents. I know secondhand that someone else at his school just had a bout with MRSA this fall, but I don't know who it was.

Now that we've been living with this problem for a while (month+ since diagnosis, three months since actual appearance of infections), I am trying not to overdo the talk outside the immediate family. I think it scares and depresses my elderly parents, who have their own health issues to consider. My mom has been very encouraged by how much better our son is looking, and she is hopeful that all the supplements will help. My brother is worried about visiting with his kids later this month.

Do any of you have other friends or acquaintances that you can be open with? Or is everyone dealing with the same mix of emotions - ? As a mom I am having a hard enough time with the teen roller coaster, I just wish I had more 'face-to-face' friends I could talk to about all this...

Re: Emotional toll in the family
Reply #1 by Lois
Posted: December 1, 2009 at 18:53
I tell and educate EVERYONE!!! I don't care about stigma. We have to get the word out. That's how we find others who are struggling with MRSA and others who are very interested in educating themselves and supporting us. It's nothing to be ashamed of.
Re: Emotional toll in the family
Reply #2 by Nancy R
Posted: December 1, 2009 at 21:55
I do the same thing as Lois. I figure ignorance is NOT bliss when it comes to this mess. If I had truly understood the impact of MRSA on me and my family, I'd have been far more careful about what I allowed to be done to me in the hospital where I got it.

Try to calmly explain that it is everywhere and that usually healthy people without cuts or skin abrasions will not have a problem. Explain that its important to keep lesions covered and maintain excellent hygiene. It's an excellent opportunity to talk about good nutrition.

I did not have people to my home for 2 years for dinner parties or cookouts because I was so afraid I might pass it on. It was at another party that someone approached me and we talked about MRSA. Turns out that 4 other people in the same room had it and I didn't even know. Use common sense and common courtesy.

I do think it is very important, however, to let manicurists (frankly, I wouldn't do a manicure or pedicure in any salon ever again) and hairdressers that you have MRSA for their protection.
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