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how long will this awful fatigue
Started by catlin
Posted: October 18, 2005 at 15:45
last after the skin lesions clear? (For those of you with skin lesions only.) thanks for any replies
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Re: how long will this awful fatigue
Reply #1 by Sue
Posted: October 18, 2005 at 20:34
I was alwful tired too, but I attribute mine to the massive doses of medications I was on. For a while there I thought that the cure would kill me! If you're still taking meds and are tired, I would expect to feel better a week or so after the meds stop.
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Re: how long will this awful fatigue
Reply #2 by Sandi
Posted: October 20, 2005 at 04:20
Are you on Vancomycin? It does play havic with your system. I am now on zyvox ( I think is the name) I got Vancomycin toxic. This new medicine seems to not make me as tired, but it is the last antibiotic that treats MRSA. I think the expense and being the last antibiotic makes physicans hesitant to prescribe it. If you are on Vac, be sure to watch all your blood work, if your levels get out of track you really do feel bad. How you get better soon. Sandi
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Re: how long will this awful fatigue
Reply #3 by Denise
Posted: October 21, 2005 at 05:01
Blood levels must be checked on Zyvox also. Certain foods should be avoided as well, such as red wine, MSG, sauerkraut, luncheon meats...
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Re: how long will this awful fatigue
Reply #4 by ok, still have it then
Posted: October 22, 2005 at 11:32
I have nosocomial MRSA in the abdomen and now possibly in the lungs. I tested postive on a gallium scan for infection in the posterior left mid-thorax. I also have mild atelectasis within the lingula of the left lung (partial collapse). They found a left pleural effusion.

I just took too sputum samples in and asked that they be specifically tested for MRSA. I have found that if you do not ask for the cultures be tested for MRSA, they come back negative even when they really ARE MRSA. That happend with a very deep, multi-faceted labial abcess. Other lesions had tested positive for MRSA at a different lab that was looking specifically for MRSA. I have had other cultures done on other things that looked like MRSA but came back negative.

I had been to the hospital with difficulty breathing, up and down blood pressure, tachycardia, high fever, high white blood cell count and awful noises coming from that left lung.

I still have acute abdominal and pelvic pain.

It is difficult with doctors and my insurance company. The insurance company only wants doctors to perform routine wellness testing and nothing else.

Next week my primary care doctor will do a host of blood tests and he mentioned better imaging for me. The insurance company will have a fit and it will be interesting to see if they authorize the imaging. It is my only choice since I have been refused countless times from surgeons to do a laparoscopy or laparotomy.

What a nightmare wading through the medical field for this. Even the infectious disease doctor's office told me that they cleared the skin infection, and they were not concerned about anything else?????? Even with strong symptoms of systemic infection. I don't get that. I talk to him as well next week.

The only good thing my last primary care doctor did was ask me to go to the emergency room every time I had new symptoms. This has documented the course of my illness and gives me a fighting chance. I have proof of problems and have all my records.

It has been a year since I first got sick, and probably a year before that when I ignored pain in the upper left quadrant after an ECRP done prior to gallbladder surgery in April of 2003.

I had a tubo-ovarian abcess in November of 2004 that was misdiagnosed as gastroenteritis, even after the admitting doctor was setting up surgery to go in. That was nixed. It has been a year of hell - but I am still here. At least that is 50%.
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Re: how long will this awful fatigue
Reply #5 by mrsarick
Posted: May 15, 2006 at 07:17
I don't know but i have so much fatigue too. I think I'm gonna try and ignore it. :o)
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Re: how long will this awful fatigue
Reply #6 by chris
Posted: May 15, 2006 at 14:57
The fatigue is a likely result of the chronic infection. Long term chronic infections affecting the gut, gums, lungs and sinuses are often misdiagnosed as Chronic Fatigue Syndrome (CFS), Fibromyalgia and other similar "conditions". Unfortunately the fatigue could last as long as the infection.
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Re: how long will this awful fatigue
Reply #7 by Kate
Posted: May 15, 2006 at 16:24
It took me a couple months to really get all my strength back. Now I occasionally feel little sharp pains that feel like bug bites in my legs and on my head and arms. I think those medicines are so strong it really can throw your body upside down. But you WILL feel better! Be sure to eat right and be sure to get iron and potassium in your diet. That helped me. My doctor told me to eat nuts, fruit and crackers throughout the day between meals. It helped!
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Re: how long will this awful fatigue
Reply #8 by Kate
Posted: May 15, 2006 at 16:34
Oh, and I wanted to say I took someone's advice and found inexpensive tea tree oil soap my stylist ordered for me from the Paul Mitchell Salon catalog. They carry tea tree oil and tea tree shampoo also, and was cheaper than Trader Joe's or the Nutrition stores I've looked in. It seemed to really help those last few suspicious areas of my skin.
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Re: how long will this awful fatigue
Reply #9 by Alex
Posted: June 4, 2006 at 14:38
I'm so glad I found this page. I've been fighting two nasty MRSA's for months now. I've had three abdominal surgeries and 3 long courses of Zyvox, as well as a bunch of other antibiotics. There's no lesion on my skin now, so there's nothing to do but wait. If one comes up my surgeon will go in and find the infected stitch or whatever it is. I just have no strength anymore. I can sleep for 12-14 hours and wake up feeling pretty normal, but that will only last 3-4 hours and then I'm cooked for the rest of the day. I don't know what else to try - who else to talk to about this. Can this stuff be spreading to other organs (i.e. lungs, etc. as was mentioned by "OK"? Any insights would be appreciated.
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Re: how long will this awful fatigue
Reply #10 by Kate
Posted: June 5, 2006 at 12:09
Alex, it took a LONG while to get my strength back. Months and months. And months. I really think zyvox is super hard on you, as well as the ivs & MRSA. You should talk to your doctor about your fatigue. Blood problems caused from the zyvox & antibiotics & infection & surgery can make you over-whelmingly tired also. So I would suggest that you have a blood test soon to see if you are deficient & that is adding to the fatigue. (Yeah, I'm not a doctor, just a fellow fatigue sufferer.)

Anxiety is a common side effect mentioned by many here-- going on and coming off of zyvox. Anxiety in many forms including depression. So be aware of that also. You could check your temperatures daily to keep tabs on that if you think you are still active.

I can't tell from your post if you had HA-MRSA or CA-MRSA? It sounded like CA-MRSA until you said the surgeon would "go in and find the infected stitch". (Time for second opinion?) Did you ever see an infectious disease doctor?

You have been through a lot--MRSA for months and three surgeries. That is a lot for your body (and mind) so try to flow with it. Be proud of yourself for what you've been through! Good going Alex!!!
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Re: how long will this awful fatigue
Reply #11 by Alex
Posted: June 11, 2006 at 13:59
Thanks so much for your support and kind words, Kate.

I don't know the difference between "HA-MRSA" and "CA-MRSA". I know that I contracted two "super bugs", one caused by the introduction of someone else's fecal matter into my abdomen during the second surgery, and one that is carried under the false nails of health care workers - regardless of how well they wash their hands. They ended up making a case study of me because my bugs are soooo tough to kill.

I had the blood tests and I've moved from my local hospital to a top surgeon at Beth Isreal in NYC. If the infection "re-surfaces" he's suggested seeing an ID doc. The local ID doc did more harm than good.

I didn't know about the anxiety and depression associated with Zyvox - thank you for that.

I had Chronic Fatigue years ago and don't know if my new compromised immune system has re-kindled, or if this is still the MRSA, or the after-effects of the surgeries and antibiotics. I don't know how to proceed. I feel little pains in my abdomen and am sure it's the bugs in there - spreading and waiting to re-surface. And then I think that's it probably in my head and anyone who's had so much "work" done on their abdomen is likely to have an occasional ping. I wish someone knew what the heck is going on. I really want my life back.

It sounds like I have it pretty easy compared to many folks on this board. But then I wonder if they are my future.

How are you feeling now, Kate? What is your story?

And thank, you, again, for writing.

Alex


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Re: how long will this awful fatigue
Reply #12 by Kate
Posted: June 12, 2006 at 05:02
Alex,
Sounds like you are finally getting what you should have had in the way of diagnosis. Now you need to be vigilant and follow through. You are going to the best hospital in the world. If the top doc says see the id doc, then DO IT! Get all the help you can. Here they set up a team of doctors and after I consulted with each one they would confer and then recommend treatment. That finally turned the tide. Be sure to tell them that comment about the "infected stitch." That sounds really shady.

Were you having tests or surgery? They like to study you because you must have two strains maybe! Lucky guy, Alex! HA-MRSA is from health care settings (i.e. FECAL MATTER in a surgical site, yikes!) and CA-MRSA is from community (i.e. prisons, gyms, dirt, FAKE NAILS, anywhere). Usually the HA-MRSA hits you harder but CA-MRSA is more chronic and can also be horrible. For example, they thought my CA-MRSA was going to my brain, and I know someone who had CA-MRSA go to their heart valve.

If you are having pain in your abdomen and you had surgery there you need to be sure to mention that to the doctors. My friend had HA-MRSA after gall bladder surgery and he tells me even after a couple years he still feels "things" there but he's okay. It did made him have a flare up of shingles. So it does really compromise your immune system--the infection as well as the treatment. I feel "things" in all my lesion sites which always scare me to death, too, but it must just be nerve damage.

There are articles on the CDC and NIH websites that may be helpful.

It is possible that you are still healing from the medications and infection and not having another chronic fatigue episode. Does your fatigue feel different? You sound like you are still in active treatment so you probably won't feel less fatigued for a while--at least until your medications are stopped. You should talk to your doctors about how you feel.

I'm feeling well now but I still have one lesion under my arm that hopefully is scar tissue (knock on wood)--the doctors are watching. I had the classic spider bite misdiagnosis until it spread and really got hold of me. I ended up having several hospitalizations and surgeries, and major surgery on my face and plastic surgery and skin grafts to cover that hole. But I had previously had cancer and radiation to my head that made it worse (I'm sort of an unlucky person). They then made me repeat all my cancer tests because they were worried about my immune system when I was fatigued. That's pretty nerve wracking but I'll tell you--MRSA was worse than cancer treatment in the fatigue factor. I'm just getting over the leg pains I had with zyvox and bactrim and it's been three months since my last lesion. No one I live with got it so what other people experienced didn't happen to me. Your case will be unique to you, so what you read on the boards probably won't happen to you.

You'll get your life back. You always had it. It just changed a bit this year. You'll feel better soon! You are having a unique experience right now! I feel like I lost a year of my life. And I was out of work for months. But recently I feel like the light has turned back on --you will too! Be your own advocate and make the doctors help you. And many warm hugs to you!
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Re: how long will this awful fatigue
Reply #13 by ladyk stranded
Posted: July 9, 2006 at 20:16
Thank you so much~~~ for addressing the issue of severe fatigue. So many mention the importance of being properly treated, and I have to say it is with all my heart that I wish I could be properly treated, yet it is not from lack of my trying. Iíve seen 7 doctors/11 appointments between them/8 antibiotics... all since April 30, 2006. I have been MRSA positive since June 19. It all started with my left labia swelling 4/5 times normal. On the 4th day of this I sought help at my local ER, where two doctors sliced deep into my swollen labia thinking it was a Bartholin Cyst then a tumor. First culture of the site was done 5 days post cuttings, which showed Pseudomonas and staph. Six weeks later I'm MRSA positive.

My only treatment at this time is taking my 3rd 10 day round of Septra/Sulfamethoxazole
TMP DS I take one in the AM, and one in the PM. When this last prescription finishes I will have been on this particular antibiotic for 30 days consecutively. At the time of the culture discovering MRSA, it did show sensitivity to Septra. Over the past few days Iím noticing small pinpoint sporadic outbreaks, which are in no way as serious as the full blown outbreak I experienced while off antibiotics. As it stands Iíve been waiting two weeks now on a referral to see an Infectious Disease specialist. There are only two physicians in my area who are ID specialist. Both are booked beyond their ability. I was shocked (having very good PPO medical coverage) when I called the referral office and was told they didnít schedule appointments this way. I had to have my medical record faxed to his office for review, then he will decide whether or not heíll see me as a patient. Since itís going on two weeks now I guess he hasnít decided.

It is hard not to notice through my personal search for information that most MRSA patients are commonly on medications other than what I've been prescribed. My diagnosis of MRSA came by way of a needle stick culture from an active eruption. Iíd very much like to have another culture. I suppose there is a measure of denial being exercised here, but when considering the first culture did not present MRSA, and six weeks later the second culture results did, (two different doctors/two different labs) I feel I need confirmation. I guess hope against hope Iím wishing it doesnít show MRSA at all since Iíve been on non-stop antibiotics.

Iím worried about MRSA spreading into my blood and requested a blood test because the degree of fatigue Iím experiencing can lay me down only a couple of hours after getting out of bed. I was told by my GYN doctor if I have MRSA in my blood Iíd know it. No blood test was ordered. In fact no blood test has been done since all this started. I have the problem of kidney infection and was treated with Cipro.

Seems Iím in a fight for my life. It is far beyond me to understand why it appears the medical community where I live do not seem to take the issue of MRSA seriously.

I'm not a depressive type of person, but this has knocked me off my feet and I wonder how long I'll be able to hang on working against everything ie infection, lack of correct medical treatment. No one seems to be alarmed, except me and my loved ones

what is a person to do?
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Re: how long will this awful fatigue
Reply #14 by Mina
Posted: July 9, 2006 at 20:26
Hi ladyk stranded. I understand what you are talking about regarding the fatigue. I had that for months even after treatment, and no sign of infection. I still do not think my immune system is back were it was pre-MRSA infection. I think this bug is so strong that it can whack your immune system down hard, and then excessive medications don't exactly help with that either. I know I had also been dealing with a candida infection in the very beginning and I read that candida can also cause some fatigue.
It has only been that in the last couple of months that I have been feeling much more normal. It's been a long time.
By the way, I took the same antibiotic you are taking for 30 consecutive days twice a day. I took a pill every twelve hours. Be sure to take all of your medication. This bug will fight to survive it, but keep going. All the stronger bugs will be killed during the final days of your treatment. Don't give up. I had taken the same antibiotic in the beginning for only ten days and that wasn't long enough. Infection came back.
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Re: how long will this awful fatigue
Reply #15 by ladyk
Posted: July 10, 2006 at 01:47
Hi Mina...

Thank you for your encouragement. Your post gives me a glimmer of hope that I might be lucky enough to get rid of this menace one day.

I hope you don't mind if I ask you a few questions. Have you ever figured out how you got MRSA in the first place? How long total did you end up taking the final dosing of Septra before you stopped? Did you have a test that reflected you were MRSA negative, or did you just stop having outbreaks?

Thank you Mina & stay well








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Re: how long will this awful fatigue
Reply #16 by Mina
Posted: July 10, 2006 at 04:37
I believe I was infected while in the hospital. It was within a few days of being out of the hospital that my MRSA infection began. I took the antibiotic for 30 days straight, and have been boil and infection free since. I have not had any cultures done, but I am considering having them done just because I am curious about whether or not I am still colonized.

No problem Ladyk. We can encourage eachother because we have all dealt with this menace, and can understand better than someone who has not been infected. Stay positive. I know a diabetic that has just dealt with this too, and she seems to be doing fine now after treatment.

Mina.
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Re: how long will this awful fatigue
Reply #17 by MICHELLE
Posted: July 16, 2006 at 08:10
I HAD MRSA THAT WAS IN THE NOSE AND STILL THERE, I HAD A NOSE DOCTOR WHO TOLD ME I HAD MRSA, BUT DID NOT NO HOW TO REALLY TREAT IT, DID NOT UNDERSTAND SYSTEMS I HAD DURING THE MEDICATION HE GAVE ME. THE MRSA, ENTER THE BLOOD AND AS STRONG AS AMUNE SYSTEM I HAD, COULD NOT FIGHT IT. 3 MONTHS I COMPLAIN DURING MY TRATMENT OF ACK AND PAIN AND TEIMTURE, AND NO ANSWER OR HE WA NOT EDCATED ABOUT MERSA, THAT I ALMOST DIED, I HAVE MRSA, BUT IT COLNISED, THAT I CAN LIVE A NORMAL LIFE, THAT I COULD HAD MRSA FOR MANY YEARS, BUT I WAS ABLE TO LIVE WITH IT, UNTIL I WAS TREATED THAT I GOT SICK. TODAY OK, BUT I NOTICE WHEN I GET A CUT IN THE SKIN, I GET TIRED, MY BODY IS ABLE TO FIGHT AGAINT THE INFECTION, WHICH I THINK ITS MRSA. BUT FOR A DAY OR TWO I' TIRED AND THEM I;M OK.

I THINK THIUS WAS GOING ONE BEFOR I NEW ABOUT MRSA, BUT BECAUSE OF MY AMUNE SYSTEM , ITS ABLE TO FIGHT BACK

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Re: how long will this awful fatigue
Reply #18 by Mina
Posted: July 18, 2006 at 07:27
I don't think we can say for sure how our immune system handles MRSA. It's equipped to clear pathogens out of our body many different way, but...

I've read that it's thought that MRSA has developed ways to avoid/fight our immune response and thus that's why it's so hard to clear up. How in the heck a single celled bacteria can do that is mind boggling, but it has developed the ability to use a biofilm, which protects a colony, and that's just one measure it has in it's corner. I read an article that suggested a biofilm can even help protect it from Vancomycin. So it's not such a stretch to think the use of a biofilm and whatever else it does would protect it from our natural immune system.

But despite that, people have been getting better, it happens all the time and some people never even get sick despite having come in contact with the bug.

I don't think we know everything there is to know about this bug, but maybe we will in the future, and science will learn to adapt our treatments in more natural ways, to the strength of this bug, instead of relying solely on stronger and stronger antibiotics which only make this bug stronger, scarier and more virulent.

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Re: how long will this awful fatigue
Reply #19 by Kandice
Posted: October 29, 2012 at 16:05
I know it's been a long time since someone has posted on this page,
but I'm really glad I found it. In September, I had a bad case of MRSA
on my nose. I had IV antibiotic treatment, and three courses on Zyvox.
Basically, I feel like my body is shutting down on this medication,
but after reading all the posts, I guess it's normal. I should feel
normal after 2 months? I can't eat anything without feeling like I'm
going to be sick. And the only food I seem to be able to somewhat
stomach are potato chips, but I think that's because of the salt. Did
anyone find some NUTRITIOUS food that didn't hurt them?

Also, I think all the MRSA is gone on my nose, but it's still painful
on the tip and there's a small area that has zero feeling/tingles when
I touch it. Should I be worried or is this just nerve damage?
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