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After effects of long term Vancomycin use.
Started by LindaA
Posted: January 22, 2009 at 15:12
Hello all,
And a big warm hug to all my forum friends, especially Lady K, Linda Mc. & Nancy. I won't promise anything, but I will try to weigh in as often as I can to try and offer my knowledge of MRSA to everyone. And at this point, I feel I'm somewhat of an expert on the subject.

As many of you know, I had a long 16month battle with MRSA in the blood that almost took my life. Within a 52 week period I had been given over 32 weeks of IV antibotic infused twice a day taking almost 2 hrs at a time.

After my last bout, and my blood was not testing possitive for MRSA, it took a good year before I felt I was out of the woods, and well on the way to having a strong, healthy immune system, ready to fight anything. and now, it has been a little over 2 years now, and still MRSA free. But I have been left with a few residual presents, compliments of MRSA.

I suffer from Reflux but is now controlable with herbals, and 3 doses of zantac daily. Before this, I had chronic laryngitis for almost 1 year. Now my voice as well as my singing voice(I've been a singer all my life) is back to normal.

I also suffer from what is called lymphadenopathy(enlarged lymph nodes particulaly under the arms and in chest tissue) I've had a double mastsectomy and had decided to try breast reconstruction when I contracted MRSA. And it was not hospital aquired MRSA, I contracted it from working in a nursing home 7 weeks after I started the proceedure.

I've also suffered from extreme muscle fatigue. I had to really work hard to regain a certain amount of strength and flexability that the MRSA robbed from me. I started walking, doing simple short core exercises, and them adding ankle and wrist weights to my walking regimine. I was already eating very healthy and taking all the supplements necessary to rebuild my immune system regularly. I am now 60 pounds lighter(gained 40 while on the Vanc) and walk an average of 5 miles a day. with a day off here and there.

I'm gearing up for a ski trip next month and feel that this will be the big test to see if I'll be able to ski or not. We went last year and that was my big wake-up call. I thought I was in fair shape, just tired. But I wasn't able to ski. My body just couldn't let me, and it became one huge spasm after the first run down the mountain. This was, of course not only disappointing but a little scarry as well. I'm only 54 and am not ready to give up life yet. so with the help of my son, who's a personal trainer, I've got my health back on track. And if I can do it at 54, then anyone can to it. All it takes is a will, and determination not to give into MRSA, and to decide to life your life to the fullest, whatever that may be for you.

So good luck to you all, and let me know if I can help anyone along. I'll try to check in 3-4 times a week, just in case.

Again, Hugs to all my main support people, and God bless the rest of you to give you strength to fight.
LindaA
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Re: After effects of long term Vancomycin use.
Reply #1 by ladyk
Posted: January 22, 2009 at 16:23
LindaA -

A warm 'welcome back' to you! I'm so glad to know you are well, and will be weighing in on forum again.

I understand the residual presents, having a few to deal with too, as most of us do. A big defining one tomorrow, but will talk about it later.

I'm glad you're back Linda.

Hugs to you through the air~
ladyk
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Re: After effects of long term Vancomycin use.
Reply #2 by Nancy R
Posted: January 28, 2009 at 05:15
Hi Linda:

I must have missed this. So glad you are back for it was because of folks like you that I also managed to survive my MRSA infection. I think its very important for those of us that DID have a good outcome keep an eye on those that are currently struggling. It gives them hope!

hugs,

Nancy
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Re: After effects of long term Vancomycin use.
Reply #3 by Marilyn Bannon
Posted: July 22, 2012 at 16:58
Linda,

To quote you -- we are undergoing the same process...

"I also suffer from what is called lymphadenopathy(enlarged lymph nodes particulaly under the arms and in chest tissue) I've had a double mastsectomy and had decided to try breast reconstruction"

LindaA,

I am Jim, Marilyn's husband. She is in week 3 of Vanco IV at home and I have become the "Nurse".

Her story is very similar to yours (but hopefully, not as serious!). She just got back 3 days ago from the third trip to the hospital (the second was to install the PICC) and had the expander removed/replaced in her left breast -- the one with the cancer in it.

Right breast looks fine, but even NOW -- after 4 days back from the hospital, she still has that darn redness under her incision in her left breast that CAUSED ALL THE CONCERN.

She complained before the third hospital visit of pain in her neck at one spot (and a "lump/hardness")and the Dr. said it was a lymph node and not to worry.

Now she has the same pain in her left foot arch. So, both lymph nodes impacted are on the left, problem side.

I was searching for "lymph node pain as a side effect for Vanco" when I found your article.

MERSA has not been identified in Marilyn's case, and the Dr. suspects "staff", but the results from cultures taken Wednesday (from the interior breast wall cavity) will not be available for a few days -- to specifically identify what we are dealing with.

Any input/guidance you can provide would be appreciated.

jimbannon306@comcast.net

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Re: After effects of long term Vancomycin use.
Reply #4 by ladyk
Posted: July 22, 2012 at 18:42
Marilyn/Jim -

I'm sorry you are experiencing such difficult health related circumstances.

You might consider obtaining culture report as diagnoses of 'staph' are often a catch all phrase, even when MRSA (mutated staph aureus - Methicillin-Resistant Staphylococcus Aureus) is the infecting pathogen. It is important to know... we can request copies of any/all content within our medical files. Lab culture reports are of highest value when determining the identity of the culprit. It is our legal right to be privy to what our medical records entail. Some physician offices do charge a nominal fee of a few cents per copy, as well Marilyn will have to request, and sign release authorization form.


Although LindaA doesn't frequent forum as often these days, I do continue to have contact with her, and will forward your post to her today.

Best wishes to you both,
ladyk

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Re: After effects of long term Vancomycin use.
Reply #5 by mary hall
Posted: November 11, 2012 at 19:56
My sister had a terrible reaction to Vamcomycin starting the last day of IV therapy for MRSA called "Redman's Disease" An entire body covered with pustules, large blisters and errythema. She lost every square inch of her skin on every part of her body and the specialized care she needed was only availabnle to her in a large teaching hospital. She finished in June 2012, after a recurrance of the pneumonia, with her treatment and is now within the past two weeks having sudden hair loss, really global and obvious. Anyone else having this problem?
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Re: After effects of long term Vancomycin use.
Reply #6 by kathywarfel@yahoo.com
Posted: July 18, 2013 at 13:23
I currently am on week 4 of a 6 week protocol of vancomycin following a surgical procedure to repair a trimalleor fracture of my right ankle. I began receiving the vancomycin following my second surgery and had the "Red Man Syndrome" reaction following that infusion. I did quickly heal from that side effect and opted to continue the vancomycin treatment as the othe antibiotic options held similar side effects and I was worried that adding an additional antibiotic to treat an unknown bacterial infection would really throw my body into another tailspin. Thus far I am dealing with the vancomycin treatment and am maintaining an appropriate trough level according to the ID doctor. Infection which is still unidentified is still present and I have subsequently had to have a third surgery to take out the hardware they put in my ankle at the first surgery. All of this has occured over an 8 week period with two more weeks to go on the vancomycin. I'm losing muscle tone having been a very active person prior to the truck hitting me and the 3 surgeries. My hope is to finally be on the road to healing and no more vancomycin. My concern is the long term effects vancomycin will have on my aging body in the future. I am 67 years old and the isolation and total dependence on others for my every need has been the most difficult part of healing my body. It is a scary experience to realize that there may be future problems all relating to the treatment using the vancomycin. Still do not know the actual bacterial infection but my best guess is it is MRSA though the doctor and ID doctors are not labeling it as such.....would love to hear from you RE your long term recovery..
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Re: After effects of long term Vancomycin use.
Reply #7 by Julie
Posted: January 13, 2014 at 07:01
Hi, im new here, found you through google. Back in 2009 i fell off a ladder at work
and broke my tibia and fibula, the doctor put a metal rod and screws in it and id
been sore for the past 4 years with it but thought nothing of it, assuming i would
be sore forever. The beginning lf november 2013, my knee had gotten swollen
with an extreme amount of pain, some days at work it would get so bad i would
just start crying my eyes out in front of customers, i felt so bad i was trying so
hard to deal with the pain. Well really long story short, on dec 26th 2013 it was
soo bad swollen, infected and feverish the dr decided i was having surgery the
next morning. The plan was just to take all foreign objects out. When he was in
there he discovered a serious case of mrsa on the screws that went all the way to
the bone. Im now doing iv vacomycin at home for 6 weeks and then oral
antibiotics for 6 weeks twice a day for 3 hours each.. Surgery was only 2 weeks
ago and my glands are very swollen and hurts so bad i dont wanna turn my head.
Is this normal??? What should i do?
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Re: After effects of long term Vancomycin use.
Reply #8 by rosemary
Posted: January 25, 2014 at 21:10
Had a colon resection in 2007. After the surgery I had
home health for 6 mos. Due to an abscess, cellulitis,mersa
and redman syndrome. is now 2014 and when I get sick
pain in my lymph nodes under my arms in my chest is
unbearable. Can anyone tell me what is causing this lymph
node pain? PLEASE
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Re: After effects of long term Vancomycin use.
Reply #9 by Abby
Posted: April 18, 2014 at 15:52
I too an on IV vancomycin for MRSA and have horrible
swollen glands on my neck and a fever. I was at the ED
last night and my ID Dr said it was a reaction to the
vancomycin so he D/C'd for now. I see him today so I
don't know what will happen.

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Re: After effects of long term Vancomycin use.
Reply #10 by Bob Anderson
Posted: April 19, 2014 at 04:58
Abby -

So, what happened at your ID's office?

If you still have a problem, read some of the garlic water bath threads and See if anything interests you.

Good luck to you.

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Re: After effects of long term Vancomycin use.
Reply #11 by Grace
Posted: May 5, 2014 at 08:26
I can so relate. I had an ACL reconstruct and landed in the hospital because I
could not negotiate the stairs at home for f/u appt. while there I had a meltdown
from all the stress so landed myself in a different hospital. The area of incision
started looking really bad & the md on duty could not get a hold if iriginal ortho
surgeon & when she finally did after a week he came in & prescribed oral Keflex
for 14 dats & left. With my leg looking really bad now & too ill & too much in pain
to advocate for myself they finally called in another surgeon to take a look. I have
no recollection of what he said, only that he was putting me into surgery the next
day. He ended up operating 3 times consecutively and said the metal had to be
removed along with the rest of infected area, which included the bone. After
surgeries I was transferred to a skilled nursing facility where they installed a pic
line and had 2 months of IV Vancomycin. The ID specialist came daily to check
my breathing & in there I got c.dif & at the end was told I contracted MRSA & put
me in isolation for about 2-3 days where I was given oral vanco. I was & have
been MRSA positive yet asymptomatic. Wonder if I had MRSA all along & may
have told me but I was by myself and on heavy IV pain meds. This occurred feb
2011 to April 2011. Had inpt pt to the point where I could mKe the stairs into my
residence. I've wondered about the consequences if IV cancer & happened along
this forum.
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Re: After effects of long term Vancomycin use.
Reply #12 by Bob Anderson
Posted: May 5, 2014 at 14:42
Grace -

I don't know what your present situation is but you might read the garlic and garlic water posts in this forum and gain a whole new insight as to how to self treat MRSA at home cheaply but effectively.

Good luck to you.




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Re: After effects of long term Vancomycin use.
Reply #13 by Sally from Hamilton, ON
Posted: May 23, 2014 at 22:02
I had knee replacement surgery on February 18th. (I already had one hip and the other knee done - no complications) I was discharged on the 22nd and had a bit of redness showing up. My leg started to feel worse and while getting the dressing changed on the Monday the 24th, the nurse suggested I get it looked at again by the doctor. I went from there to the hospital and the following day was readmitted.

I was in another 3.5 days with IV antibiotics. I don't know which one. They decided to put in a PICC line on the Saturday (March 1st) and I went home with a bunch of Vancomycin IV bags being delivered once a week and a nurse coming in to do the necessary stuff.

After 77 days, I had a doctor finally take me off the vancomycin because he said if it was just a soft tissue infection it had done what it was supposed to and if it was a problem with the knee it wasn't going to help anymore.

Anyway, my question is: Is it usual to have these symptoms after going off it:

very soft stool
nausea
headache
blurry vision
upset stomach
vomiting (just once)
dizziness
loss of balance
AND
possibly fainting in the car while driving
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Re: After effects of long term Vancomycin use.
Reply #14 by Danny Hall
Posted: April 12, 2015 at 14:23
Thank you for comments, my wife is 59 and contracted
MRCA on 1/23/2015. She takes iv infusions twice a day
and as of 4/12/15, the infection has not cleared up. I
have searched the net exstencefully looking for
information on side effects (long/short). We have
noticed that her hair is thinning and was wondering if
anyone has experienced this also. We will keep fighting
and just to let anyone know she contracted this from
steroid injection. Thank you
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Re: After effects of long term Vancomycin use.
Reply #15 by Danny Hall
Posted: April 12, 2015 at 14:31
Thank you for comments, my wife is 59 and contracted
MRCA on 1/23/2015. She takes iv infusions twice a day
and as of 4/12/15, the infection has not cleared up. I
have searched the net exstencefully looking for
information on side effects (long/short). We have
noticed that her hair is thinning and was wondering if
anyone has experienced this also. We will keep fighting
and just to let anyone know she contracted this from
steroid injection. Thank you
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Re: After effects of long term Vancomycin use.
Reply #16 by mrsa momma
Posted: April 23, 2015 at 08:15
My hair is thinking and could be mrsa
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Re: After effects of long term Vancomycin use.
Reply #17 by Bob Anderson
Posted: April 23, 2015 at 13:59
You might read the garlic and garlic water posts in this forum and gain a whole new insight as to how to self treat MRSA at home cheaply but effectively. MRSA cannot become resistant to the allicin in crushed raw garlic. Think about it.

Good luck to you.



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Re: After effects of long term Vancomycin use.
Reply #18 by will s
Posted: October 1, 2015 at 02:47
anyone still out there...long time since this thread started

me....vanco iv... for mrsa

long term side effects...

started with kindney stones
then vascular issues in leg

seems like my muscles are stuck....glued together

sound familar ???


oh yeah....15 years later

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Re: After effects of long term Vancomycin use.
Reply #19 by Angela
Posted: October 2, 2017 at 07:35
my vision has rapidly decreased also my hearing is a lot worse and my
teeth are breaking really bad
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