MRSA Discussion Forum USA and Canada

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Painful lump on head after MRSA
Posted by L.W.
Last Reply November 12, 2006 at 20:18
Started September 7, 2006 at 18:08
Hello all.
I'm recovering from CA MRSA with a wound on my leg. I've been on a Bactrim/Avelox combo for a week and had one round of Rosephin (sp?) thru an IV.

I'm feeling much better, but I've noticed that last night and today I have 2 painful lumps on the back of my head behind my ears. It's giving me a headache and the right side of my head is much worse than the left. I'm wondering if anyone has any insight to this? It's almost hard to keep my head up since it's painful. I can't see it as being an infection since I'm already on antibiotics.

Any help would be appreciated! Thanks in advance.

3 replies...

MRSA in Bones
Posted by Nancy
Last Reply November 12, 2006 at 08:47
Started February 25, 2006 at 01:12
I was diagnosed with MRSA in September 2005. It was caused by foot surgery in September 2005. I had 4 D & I surgeries on the foot. The doctors were not able to get the MRSA under control.

A new test showed that the MRSA had now gone into the bone causing osteomyelitis. The surgeon went into the heel bone and drilled out the center of the bone anddrained all the MRSA infection.

I was sent home with a open hole in the foot. I treated the site myself for 6 weeks. During this time I was also treated with IV Daptomycin for 6 weeks.

Late in January, I began getting swelling and pain in the area. The surgeon was following me to make sure that it did not get critical. I called the surgeon on the 23rd of February because the site of the wound was draining liquid.

He is sure the MRSA has returned. He said on the phone, "We both know the infection is back. I'm sure that we have dead parts of the heel bone again." I have to agree with him. I take neurontin and naprosin e... read more

4 replies...

TRIBUTE OF THANKS TO ROB
Posted by ladyk
Last Reply November 11, 2006 at 23:56
Started November 10, 2006 at 17:46
Dearest Rob

Thank-you. These two little words hardly seem capable of expressing the depth of thanks and gratitude your gift truly is. In setting up these forums you have provided a beacon of light and support for others in this battle on the front where we sadly all carry scars from the same enemy. MRSA

You are a hero to me.

I only know a bit of your story, and will say from out of the darkness you shine. Without a doubt having a place to come and learn, ask questions, vent, and support others with MRSA has saved me during one of the hardest falls of my life.

Sometimes people like yourself can to be over looked. I wanted to personally Thank -you and let you know we are tremendously grateful for all you do providing this place to come when we need it most. You are helping us all to tell our story to the world, and perhaps one day because of this, others may not have to suffer as we have.


Thank you so much Rob

Be well

2 replies...

Mrsa scar
Posted by Chrissye
Last Reply November 10, 2006 at 23:28
Started November 6, 2006 at 18:13
I have a Mrsa scar on my left leg now I have the right and left side of the scar with little bumps over it . Can those little bumps lead to the infection all over again. I am scared to have it again especially right before the holidays. If you know anything you can email me at lilsoutherngirl29223@yahoo.com

2 replies...

2 yr old daughter w/MRSA
Posted by Lindsey Mann
Last Reply November 7, 2006 at 15:34
Started November 4, 2006
My daughter had a series of bumps on the right side of her bum that I assumed was diaper rash since she was potty training and in and out of diapers. One of the bumps just below her diaper turned into a boil so I took her to in. They said she had a staph infection and put her on bactrim. She went back to her doc on mon and they tried but could not get a culture. It drained some that night but by wed was worse on thurs she went into the hospital for iv antibiotics on sun the got a culture and by mon we new it was mrsa. They did surgery on her leg to remove the infevtion so now she has open wounds that have to be packed. When they figured out what strain of MRSA it was my ped. called infectious disease at primary childrens hospital in los angelas and they put her on the correct oral antibiotic. She is doing much better but I am terrified that this will happen again. I want to do anything I can to prevent this. It was such a terrible experience for our family and I don't think ju... read more

4 replies...

MRSA the Infection cancer
Posted by Jerry Adams
Last Reply October 31, 2006 at 18:08
Started October 21, 2006 at 15:29
If anyone with this nightmare can explain why a Dr used the cancer metafor to describe the disease Please Help me understand & if you have any ? Get hold of Anne Johnstone E-mail is info@mrsasupport.co.uk

1 replies...

Ongoing Yeast and Bacterial Infections
Posted by Jenny
Last Reply October 31, 2006 at 17:58
Started October 27, 2006 at 20:23
Some of you men may not want to read this- but I got to ask it anyway. I've had ongoing vaginal yeast and bacterial infections for the past year. In less than 3 months, I've had 5 different episodes. It's too the point now that by the time that I get through with the medicine, I have another one flaring up- or it's time for my over -a- week long period. I had taken and followed all the advice that the Drs give on how to avoid getting them. I am a newleywed and this is really affecting my sex life- me and my husband never get to have sex. Are these infections MRSA related? Are the bacterial infections- MRSA bacteria? If so, then the cream that they give me is not working right? And every woman knows that if the bacteria in the vaginia are acting up, then so are the yeast! If you take medicine to kill the bacteria then the yeast over populate and if you take medicine to kill the yeast then the bacteria overgrows. What do yall think? Are they related, and if not, do you know... read more

6 replies...

3yr old has it and continues to get it
Posted by KAT
Last Reply October 31, 2006 at 14:35
Started October 30, 2006 at 12:07
I posted back in sept. My 3yr old got MRSA, he finally recovered so we thought. It seems like every two weeks it is coming back. He got bit by a masquito a week and half ago and ended up in the hospital within 24hrs with a MRSA outbreak we finally got him cleared and he got bit night before last and yesterday we noticed red swollen welts and boils type sores appearing again. What to do? I am sick and tired of my son getting an IV and going threw this every time some stupid bug bites him. IS there a way to stop it, yes I use insect repellant but it doesnt work. I cant keep him in a bubble for ever though either. I feel like pulling all my hair out. I have all the natural remedies adn they help alot but is this going to contunue forever. Any help would be greatly appreciated who do I call does he need a immuniologist? a Disease specialist?

4 replies...

staph infection
Posted by lisa
Last Reply October 29, 2006 at 17:21
Started December 12, 2005
My son age 15 went to have PCL reconstruction in March 2005 on his knee,it was an outpaitent surgery,within days of coming home the phone calls to the Dr. started.I told the Dr. of his severe pain, it took three weeks and alot of complaing before the Dr.took a needle aspiration,it was positive for staph infection and 2 hours later my son had emergancy surgery. My husband and I were given very little info. We were scared to death. My son required another clean out and drain, was put on vanc. and had a long hosp. stay. It was after 6 weeks of vanc., no improvment, sed rates still in the 60`s, crp levels high and a second oppion before the Dr. decided to remove the graph. After the graph was removed we were then told that he now developed Osteomylitis, he was placed on vanc. for 8 more wks. When he developed another infection and was placed on rocephin for 14 days.When we ask the dr. how did he get this first we were told that there was a cross contamanation during the surgery,6 wks. ... read more

15 replies...

Nearly over 1st lesion
Posted by Daniel B. Wheeler
Last Reply October 29, 2006 at 16:07
Started October 24, 2006 at 21:46
Had appointment with MD today, said I can return to work on Friday. Have now been off work since Oct. 3, so recovery/treatment for this episode was 24 days.

I recognize the possibility/probability of recurrence in the future. And my energy levels are still low. But progress is being made, and it is possible to continue a semi-normal life - something I wasn't convinced of when first diagnosed.



6 replies...

MRSA Carrier-Cure?
Posted by Bwright
Last Reply October 22, 2006 at 16:28
Started October 12, 2006 at 17:21
I've been recently diagnosed as a MRSA carrier and have passed it to my boyfriend. He just had a serious outbreak which resulted in a PICC line and vancomycin home iv treatment. I want to cure this all together. Anyone have any advice on curing me and if this is goin to work for him?? Please help-scared.

u4me_an_me4u@yahoo.com

1 replies...

Caution around uninfected public
Posted by Tiki Trash
Last Reply October 21, 2006 at 15:40
Started September 16, 2006 at 18:48
Please excuse me. I was recently diagnosed with MRSA two weeks ago (today Sept 16,06). I have been reading alot. Of course very concerned. It seems I was the usual spider bites...which were not spider bites person.

I have not been able to find anywhere (noting possibility of simply not seeing it yet) of how much caution I need to use around others. (i.e.) Do I have to stop using the library, can I still vacation at my brothers home, where there are two small childrem, can people come to my home to visit...can I invite them to stay for dinner, (pardon me for this next one if it offends anyone...Do I need to stop my swinging lifestyle...(which I have done simply including in this post). Just how much of a lifestyle change do I need to accomplish?



6 replies...

Dad with MRSA
Posted by gb247
Last Reply October 19, 2006 at 14:48
Started October 16, 2006 at 21:37
My father, 85, has been in the hospital since Sept 11 2006. He has had severe pneumonia because his immune system was so low due to chemotherapy he was going through. He had surgery to drain his lungs because he had a large absess. He stablized for the last week or so but this weekend my mother was told by the nurses that he now has MRSA. They are NOT painting a bleak picture saying that anyone in the hospital that long gets this. Making like it is not too big a deal. She has yet to speak to a doc. It was the weekend and she awaiting his call today. But I am trying to find out how alarmed I should be. Though from the US, I live in the UK now where MRSA makes the headlines all the time for being a pretty dangerous thing. I guess I just want to know what questions to ask.
Thank you for any advice.

3 replies...

cleaner effective against staph & MRSA
Posted by Linda
Last Reply October 18, 2006 at 08:10
Started October 17, 2006 at 16:25
Hi All,
Good news. I just came from my local grocery store and they are carrying a disinfecting surface cleaner for home use that lists on the label that its effective against staph and MRSA. It is simply called PS. One of the nurses from Home Health care happened to be there and stopped to ask how I was getting along. I showed her what I found and she said that this was the same product they were using at the hospital now. She wrote down what it was so she could recommend it to patients who might need it. It lists that it is effective against mycobacterium tuberculosis var. bovis (BCG) Staphylococcus aureus, pseudomonas aeruginosa, salmonella choleraesuis, MRSA, and VRSA, hepatitus B & C and Herpes simplex 1 & 2. This should be a product that everyone should have in their home for disinfecting. Also, a HEADS UP. Everyone that's dealt with MRSA in the past year should make sure to get a flu shot this season. Even if you're doing very well as I am right now, Your immune system w... read more

1 replies...

Grandma with MRSA
Posted by Tina
Last Reply October 14, 2006 at 16:49
Started October 10, 2006 at 20:02
Hi Everyone,
I've been reading your forum trying to find as much information as I can. My Grandma was diagnosed with MRSA on the first Friday on October (all my days are running together). I need help with what I can expect. My Grandma is 77 years old; she had open heart surgery 11 days before she was diagnosed. She was released from the hospital one week after her surgery however, my Mom who is her caretaker at this point had to call 911 because the wound in my Granmaís chest was bleeding profusely 2 days later. She was taken to the hospital Wednesday night and admitted on Thursday morning. That Friday is when she was diagnosed with MRSA.

At this point they are cleaning her wounds and giving her antibiotics (I canít remember off hand what they are). I know this may sound morbid to some and honestly I do have hope but I need to know the signs are that her condition may be worsening. Her chest x-ray that was done on Sunday was clear so there is no pneumonia, but she is... read more

5 replies...

doxycycline
Posted by jtswan
Last Reply October 14, 2006 at 01:32
Started July 21, 2006 at 10:17
Has anyone here tried doxycycline for mrsa?
My son contacted it, and then i got it. lovely. He had to have his cut out and was on bactrim. he does seem better, but i am concerned that it will return. We live in Hawaii, and five of his freinds who surf a lot thought they had spider bites. its definitely mrsa. i knew when i got a red itchy spot to keep an eye on it, and sure enough after two weeks it blew up. it looked just like what he had. i had doxy tablets, and i dissolved them in warm water, and added a little castor oil. i kept it on with a cotton ball and tape. its been two weeks now. i did go to the same doctor as my son. the doc said i didnt need the bactrim, as the wound was subcutaneous and not into the deep tissue. the doxy seems to be working. i got bird antibiotic, for birds. tablets. it was all i had, and it was sunday, and i didnt want to sit in the emergency at the hospital.


3 replies...

Woman To Woman
Posted by A Woman
Last Reply October 13, 2006 at 20:25
Started October 13, 2006 at 01:10


Iím not alone? Things I canít / wonít say to those I love. The battle rages on with every day, attempting to gain back what MRSA has taken away.

The list seems unending:

spring/summer/now fall
our summer family vacation (plagued by illness I tried to hide from them)
our plans (before getting sick we only had one trip alone together, now that the kids are grown)
my strength
my health
my well being
my dignity
my memory
my carefree way
my independence
my contentment
my gutsy protectiveness
my appearance
my husbandís smile
my kids at ease demeanor
hopes
happiness
fun
laughter
my faith at times
my drive as a woman, wife and Mom
my will
my partnerís touch
our intimacy as lovers
Seems MRSA even has the power to challenged our ľ century marriage. The one thing which is stronger than MRSA ! Or is it? Will MRSAís relentlessness take my life too, leaving my partner alone, and win?

What hurts my heart to the core most of all is knowing the need to ... read more

3 replies...

MRSA ON TV
Posted by Sandi
Last Reply October 13, 2006 at 13:26
Started October 13, 2006 at 01:50
There is a show on tonite on PBS at 9 central time about hospital infections. I do not know how good it is, but I wanted everyone to have a chance to watch. Sandi

2 replies...

Mrsa and pregnancy
Posted by Nicole
Last Reply October 12, 2006 at 21:58
Started October 3, 2005 at 21:57
I am on Rifampin, Bactrim, the antibacterial soap, and the cream that goes in nose. I have been diagnosed with MRSA since January. It also caused me to go into early labor in June. I just took a pregnancy test and found out im pregnant. Now i'm afraid of it happening again. I talked to both my OBGYN and infectious disease specialist and they said that I need to stay on the medications. But I'm afraid that it may harm the baby. What should I do? Any comments

6 replies...

AFRAID MY SONS INFECTION IS BACK
Posted by LISA
Last Reply October 10, 2006 at 01:31
Started April 23, 2006
Hi, can someone please help me with this,My son got HA-MRSA and osteomylitis after ligament repair about a year ago,he still needs more surgery but we have been waiting until the doctor feels he is ready to have it again, in the last week my son has had increased pain in his legs,I took him to the Dr. and he ordered repeate cultures and a bone scan,(that was yesterday) Today I got the report of the scan and it says:
blood flow images demonstrate no asymmetry.
Blood pool images demonstrate irregular activity seen within the proximal tibia on the right which is most consisted with uptake from postsurgical changes with corresponding left femoral and tibial physis activity appearing correspondingly more intense.It would be very difficult to exclude some degree of soft tissue uptake or cellulitis when correlating with the three hour delayed images also demonstrating relatively more activity seen within the left physes.Findings would be most consistent with simply postsurgical altered... read more

8 replies...

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