MRSA Discussion Forum USA and Canada

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number of topics started (2216) - Page 6 of 111
getting mrsa while having open heart surgery
Posted by Henry Rice
Last Reply November 23, 2017 at 01:04
Started March 19, 2012 at 22:46
I went to the heart hospital and had five bypasses at the same time in the coronary arteries of my heart. They let me go home in five days. I began throwing up this black bile, and was sent back to the same hospital. The doctor said the black bnile was old blood, so they had to take my sternum out because the doctor said the infection had
eaten up and rotted the sternum. Then they told me I had mrsa. I was in the hospital for a month, and then on IV's for the last three weeks.The blood tests have been negative for mrsa. Can I sue for all I went through.

2 replies...

MRSA on my face!
Posted by Cindy Hughes
Last Reply November 18, 2017 at 09:40
Started December 9, 2005 at 18:33
Reply #3 by Cindy Hughes Posted: December 8, 2005 at 22:37

My MRSA boils keep coming back in different places.
This time it is in my hairline on my face above my ear and to the left of my eyebrow. My left eye is really swollen and down the ear and into the neck area.
I've been out of work since July and do not have any insurance or a doctor. So, I don't have enough $$ or time to put up with the Dr.s that don't believe me, and only cause mutation before they culture, and the anti-biotics they perscribe don't work anyway,(Sound familiear?)
so I started using the Oregeno Oil that I had from Young Living Essential Oils on the top of the really swollen places. The actual ulcer has exploded and is draining slowly, and I found 2 Cipro that I took. So, what now? I'm sure it is being active in m,y sinusis and nose?
Summer of 2004, I was hopitalized and almost lost my hand, and had a pic with IV antibiotics for 2 weeks after release. It was paid for with my insurance from my work... read more

71 replies...

lupus and my struggle with MRSA
Posted by sonya
Last Reply November 17, 2017 at 22:59
Started February 8, 2009 at 18:22
I contracted I believe MRSA from my employer The state of KY/I have lupus and took a demotion due to medical reasons to get away from the public. Instead they put me at the Intake Desk with all Clients from the city of Louisville, needless to say I caught everything. That is when the trouble started I had a flare with my lupus which can include lesions/they got infected an bingo positive for Mrsa the med's that my former primary care doctor put me on made me terribly sick. I told and told him to no avail. Now, about 1 year later I am back at square one getting ready to go back to the Er. Oh, did I mention I have had a UTI for over one year to off and on due to the antibiotics(which caused me to have a yeast infection, diflucan did no good). I will refuse those med's I would rather die! I don't want to be bloated, gain weight, vomit, have nausea , itch , have diarrhea, and other problems. My skin is messed up enough with lupus the Mrsa doesn't help and I am so depressed. Ideas any on... read more

5 replies...

KILL THE CARRIER
Posted by Julie
Last Reply November 16, 2017 at 14:50
Started October 9, 2010 at 01:57
My husband and I have been fighting MRSA for almost a year now. Same as
everyone else on here... Hospitalized, lanced, antibiotics, creams, wash, etc...
Until, finally my doctor said "You have to kill the carrier and it is usually in the
nose". He have us Bactroban for the nose. We have been using it every other night
for months and it has worked! There has been NO outbreaks for either of us. I do
not know why many doctors, and even the ID doctor did not do this 6 months ago.
We have both been on so many courses of antibiotics it's crazy.
We are both on a great probiotic and I take Oregano three times a day. Long story
short... All of you need to kill the carrier and get the Bactroban nasal treatment.
This is a terrible infection and my heart goes out to all of you. We have been there.

18 replies...

Toddler recurring MRSA help!
Posted by Melissa
Last Reply November 16, 2017 at 02:06
Started October 2, 2011 at 02:13
My dear son will be 3 in a month. In march of 2010 (age 1) we had
taken him to the hospital for a red swollen area on his bottom, it was
very painful so I knew it wasn't a diaper rash. After getting to the
hospital they cut it open to find it filled with pus deep under the
skin, he tested positive for MRSA. Going through this was
heartbreaking and we thought we were in the clear till last month (aug
2011) he had what looked like a zit on his tummy but he would scream
if we even tried to look at it, we suspected MRSA right away and took
him to the ER where they lanced it. Both times he was on antibiotics
for 10 days. Now only a month later he has another bout of MRSA at the
base of his penis, we had it lanced and he is now on antibiotics
again. I am devistated by having to put my baby through this and the
antibiotics taste so bad even mixing it in choc milk doesnt help so we
have to hold him down and plug his nose. I am going crazy over this, I
can't keep ... read more

32 replies...

Hair loss MRSA in blood and kidney
Posted by Kimberly P
Last Reply November 8, 2017 at 14:50
Started August 24, 2017 at 06:37
I had double pneumonia (not sure if MRSA caused it) and I had MRSA in my blood
and kidneys. I was treated with Vancomycin I had endocarditis and waiting open
heart surgery and had all of my teeth extracted while I was in the hospital (no
antibiotics and had dental issues and caused endocarditis) after 2 months in the
hospital and weeks of vancomycin treatments I am losing all of my hair! Has
anyone else had this issue? It seems this has turned my life upside down. I spent
my birthday on life support and lost my teeth that I never expected would happen
and losing my hair and hubby left me while I was in rehab learning to walk again!
Oh yes, MRSA also damaged my back where I had a spinal fusion a few years
ago! Please let me know if you have any advice or if you had hair loss. Thanks!

3 replies...

Rare Gram Positive Cocci
Posted by Laura G
Last Reply November 8, 2017 at 05:14
Started November 8, 2017 at 02:56
I just received this report and none of my doctors know what to do. I have earaches, neck is painful, my brain is so very frequently useless, I also have Fibromyalgia, Chronic Fatigue, and auto-immune factors. Should I be nervous that my doctors are not doing anything regarding my situation.

1 replies...

Can you get MRSA 10 years apart?
Posted by Cakers
Last Reply November 5, 2017 at 03:43
Started November 3, 2017 at 20:45
I had a boil on my buttock in 2007, which turned into MRSA. After a
lot of wound care, it was cured (so I thought).
Now, 10 years later, after an injection in my buttock, I have a boil
starting. I was going to lance it myself, however I remembered the
history of MRSA and now I'm scared to death!
Of note, I have an excellent immune system and have had zero problems
in the last 10 years. I had a doctor look at it (he did not know my
hx) and he said to leave it alone. That was 2 weeks ago and now it's
getting bigger. Should I consult a surgeon? Could it be MRSA again?

1 replies...

Phage Therapy
Posted by Trish
Last Reply October 27, 2017 at 02:31
Started October 17, 2017 at 09:00
Some interesting info on Phage Therapy. Maybe it will be easily available soon...

https://www.washingtonpost.com/national/health-science/scientists-are-dusting-off-a-long-forgotten-weapon-to-cope-with-modern-bacteria/2017/06/30/3476ced0-4aeb-11e7-9669-250d0b15f83b_story.html?utm_term=.f05fac47da65

And this story of a life saved:

https://www.washingtonpost.com/national/health-science/this-man-should-have-died-but-unusual-infusions-saved-his-life/2017/06/30/503585b6-4aec-11e7-9669-250d0b15f83b_story.html?utm_term=.ebaa9eb02171

5 replies...

Feeling hopeless & Frustrated
Posted by Lori from TN
Last Reply October 26, 2017 at 07:42
Started October 23, 2017 at 23:30
5/2016- 40 years old and healthy, fell getting out of a vehicle and broke my
humerus. 8 surgeries, 9 hospitalizations, PICC line infection and finally had my
arm replayed in November 2016. During that time I had severe widespread bone
pain, suspected it was from the IV antibiotics. February 2017 released to go back
to work. Now, October 2017, I learn my bone has not healed together, I have been
having the same type of bone pain (although not quite as bad), temperature of 99-
100 every single night, I FEEL infected. My inflammatory markers are normal.
None of my doctors- PCP, orthopedics, Infectious Disease, now rheumatology-
nobody can figure out what is happening. Just got a bone stimulator from
orthopedics. I am beginning to wonder if these aches and pains will ever go away.
I would appreciate any suggestions/words of encouragement.

2 replies...

How do you know if MRSA has entered your blood
Posted by Scrared Silly
Last Reply October 17, 2017
Started November 9, 2006 at 04:17
Does anyone know how you know if MRSA has entered into your blood stream? I am so concerned about this stuff so much differnt info. going in every direction, I am scared myself and both of my children daughter 23 mths old and son 5 mths old have been effected on and off sense July 2006. Doctors act as if MRSA is nothing to worry about, just no big deal. I guess until it hits them or one of their family members, huh. How does the doctors no get it dealing with so many people who have MRSA. I am really wanting to know if anyone has MRSA in their blood stream and how you know if it's there and if the effects are any different. Someone please reply:( I am so worried for my children. God Bless

20 replies...

Recurrent MRSA? Advice please...
Posted by Miche
Last Reply October 16, 2017 at 04:10
Started October 14, 2017 at 01:17
Last fall I developed a huge painful lump on my buttocks under the skin. It seemed to get worse and worse. We were without water for several days and I think bacteria got into the area because I had an itchy rash already. I ended up at the doctor and they just looked at it, didn't lance it and put me on doxycycline without any cultures. I started researching immediately. Within several days, the rash had spread to the other lower buttocks area. They were both hard and painful. I ended up in the ER and told them they needed to be lanced. They lanced one side, cultured and I came back next day. They put me on clindamycin for 2 weeks and antibiotic cream. Cultures showed the bacteria to more sensitive. They ended up lancing the other side as well. 3 weeks later, the area healed well. All they said was it was staph and that it responded better to clindamycin than doxycycline.
Fast forward, @ year later, I have had problems with left side, always in the area that was lanced. I will ... read more

2 replies...

Living on antimicrobials for life after MRSA
Posted by David Master 4th Degree
Last Reply October 15, 2017 at 09:20
Started October 6, 2017 at 18:57
SO grateful for this site. Helps me realize I am not alone in this battle and that this is not just in my head.

Ever since MRSA hospitalization about 3.5 years ago, life has never been the same. I have all the hallmarks of ME/CFS and can't function about half my days. Much better now than when I was bedridden for about seven months.

My permanent solution is to be on antimicrobials like an AIDS patient. Turmeric, garlic and other naturalpathy solutions did nothing for me. Finding doctors to help is hard as they don't like to treat something they can't test for. However I got part of my life back by finally getting doxycycline, azithromycin, and antifungals. I give that information for those who are in worse shape. It is hard to live like this, and some days it is too hard.

Has anyone experienced being permanently on antibiotics? Has anyone been on them a long time and created resistant strains and can share what they did to recover? I live in constant fear th... read more

2 replies...

MRSA and belly pain
Posted by Julie
Last Reply October 11, 2017 at 19:29
Started May 31, 2006 at 06:05
Hi, this is my first post here so the story might get a bit long.....
Back in Jan 2002 I had been suffering from depression, so much so that I did a drug OD of Diltiazam CQ( a blood pressure medication). I had no idea that what happened after this was even possible. I wasn't even trying to kill myself, I just wanted people to know I was in pain...
At any rate, the OD caused my large intestine to go necrotic due to lack of blood flow. I lost all my large intestine including some of my Ileum. The first surgery I coded on the operating table and was admidistered 10 min of CPR. The surgeon had told my husband, before the surgery to start calling the relatives and prepare for a funeral. Nobody thought I would live. I was in a coma for over two weeks and when I finally woke up they weren't sure if I would ever regain my mental faculties....I was put on wound-vac treatment for over a month and had an ileostomy.

In October of that same year I gave myself an incarcerated hernia. After ... read more

12 replies...

clindamycin and MRSA
Posted by Trevor
Last Reply October 10, 2017 at 21:03
Started October 10, 2017 at 18:41
Does anyone have any experience with using Clindamycin to treat MRSA? I went
back to the doctor after taking 10 days of Clindamycin 150mg t.id. because there
is still a rash in the spot where the infection was (is). It looks a lot better than
before antibiotics but it hasnít gotten any better since around day 5 of treatment.
She put me on 10 more days of Clindamycin. After 15 days the rash itís still there.
Its light pink and has almost a satin look to it. If you shine a light on it there is a
shiny effect to it. Itís not wet but not dry... I donít want to keep taking a antibiotic if
it is not going to help me. And advice?

1 replies...

No INSURANCE?
Posted by Stephanie
Last Reply October 3, 2017 at 05:16
Started April 21, 2006 at 16:41
What do you do about MRSA when you have no insurance? My husband got hurt at work in June 05 and he had ankle surgery. Alot of the people we have talked to said that is most likely how he got it. Workers comp will not pay for a bone scan or blood cultures. What do we do? He was the first to get the boils and he got them a week after surgery. His job dropped his health insurance when he got hurt. WHAT CAN WE DO???

4 replies...

MRSA abscess on spinal cord
Posted by Naomi Thompson
Last Reply October 3, 2017 at 04:02
Started October 3, 2017 at 04:02
I have someone who has a MRSA abscess wrapped around his spinal cord.
Surgery removed most of it, left the front portion as impossible to reach. He has
been left paralyzed from the chest down. Much pain and horrible spasms. The
plan is to contain the abscess until it runs out of food with vancomycin and
ceftroline $500/day. This will continue for months in a nursing home. Is this a
good option? Any others?
Other factors are diabetes and marginal kidneys. He weighs 320 pounds yet after
gastric bypass this past May. This causes malabsorption issues.
Any help will be greatly appreciated.

0 replies...

Are people using tea tree oil 100% or diluted?
Posted by bobS
Last Reply October 3, 2017
Started September 27, 2011 at 17:14

I wanted to ask about tea tree oil too, i have a 100% tea tree oil bottle here, can i apply it directly on a mrsa rash or boil? or should i dilute it with maybe some coconut oil? What do you guys typically do and how long does it take to heal using these oils?

4 replies...

does cipro work for mrsa; allergic to bactrim
Posted by ash65
Last Reply October 2, 2017 at 18:52
Started May 21, 2010 at 01:14
I'd had a sore on my hand, rash on my legs that kept getting bigger and redder and when I went to doctor at clinic 6 weeks ago he gave me bactroban ointment to put on it and told me stop scratching. I went back 3 weeks ago then he just refilled bactroban ointment and still said stop scratching. This time I had rash on face also.

Last week went to derm (no insurance so understand my dilemma in not being able to go to infectious disease because of money) and she was amazed the clinic doctor never prescribed oral antibiotics.

She gave me 28 supply of Bactrim and today I went in for follow up appt. Over the weekend after day 3 on Bactrim I developed hives all over thighs, arms and stomach. She told me today to stop bactroban ointment, switched me from Bactrim DS to Cipro 750 mg 2x/day for 14 days.

What concerns me is she said if the Cipro doesn't appear to work over 3 days go to ER for IV antibiotics. I'm not sure and am thinking of a second opinion from urgent care doctor beca... read more

16 replies...

Meeting/Dating platform for people with MRSA
Posted by Truth Seeking Man
Last Reply October 1, 2017 at 16:42
Started October 1, 2017 at 10:26
We know that most people with MRSA, recent or older, get physically
disconnected and still have their sexuality intact.

Obviously anyone with good conscience and decency would never want to
spread his/her disease to others not to mention the risk of getting it
back in case of a full recovery if everyone acted recklessly.

I have seen many questions and comments about one partner or potential
partner being MRSA positive while the other person being MRSA negative
in this forum.

However no one has mentioned anything about the cases when both
partners having MRSA.

Why not having a meeting platform where the MRSA positive people can
interact and even find a partner for romantic moments? Is there
anything like that out there somewhere?
This should further minimizine the spread of MRSA while bringing back
some quality of life to those carry MRSA.

Any thoughts, suggestions or informations about this subject?

1 replies...

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