MRSA Discussion Forum USA and Canada

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MRSA for life?
Posted by Shelley Reilly
Last Reply January 25, 2006 at 22:55
Started April 29, 2005 at 22:01
I had posted a few months ago about my problems with mrsa. I have had two knee replacements and both have been infected. My first one the doctor treated me for rsd. for about three months while my knee was red and swollen and extreamly painful. Well, I see a new Dr. now and he has done the second knee but without sucsess. I have now had mrsa for 4 years. I am now on clyndimyicin (sp) 300mg 4x a day. It is pretty bad. I can't walk very far without getting out of breath, and am so exhausted all the time. My Dr told me to have faith in a higher power which I do. I may lose my leg. I go back in June to see what they want to do next. I feel for everyone on this board for the pain they all are going thru. I don't see how they can't find anything to fix this. I cannot take vanco because I got Stephen Johnsons disease from it.

1 replies...

Irresponsible Journalism
Posted by E.T.Gascoigne
Last Reply January 24, 2006 at 17:54
Started January 24, 2006 at 15:39
This was on the BBC's "CEEFAX" news page on Sunday, 22nd January:-
"Studying bacteria in the soil may provide clues to understanding how so-called superbugs develop resistance to antibiotics, research suggests.
Canadian scientists tested 480 different soil bacteria and found every single one had some resistance to major classes of antibiotics.
The findings, in the journal 'Science', suggest bacteria have long been skilled at foiling their foes.
They may also explain how resistance is developed so quickly to new drugs."
This is beyond even anthropomorphism!! Bacteria have no brains. They can't think let alone work out how to defend themselves against antibiotics.
There are two theories regarding superbugs and their resistance to antibiotics:-
1. Some bacteria may come into close proximity to an antibiotic and absorb a protein from it which will provide the resistance.
2. There are numerous strains of every bacillus some of which may be susceptible to destruction by antibiotic... read more

1 replies...

zyvox?
Posted by Catlin
Last Reply January 23, 2006 at 16:44
Started January 18, 2006 at 19:49
Who has used it? For how long? Did it work? What side affects did you have? Thankyou - new round of boils for me.

3 replies...

Strange death from MRSA
Posted by Vernon
Last Reply January 16, 2006 at 19:48
Started January 16, 2006 at 19:48
My father in law passed on January 6th from a MRSA abscess in his spine. A few months ago he suffered from small MRSA lesions in his armpit and on his neck. They were treated and went away. Right after Christmas, he developed back pain and thought he had slipped a disc. He went to the doctor for back pain several times over the next few days until finally his pain was so bad he could barely move. He went to the ER and was admitted, again for back pain. He started to occasionally hallucinate, and thought he was in Australia (we are in California). They took him in for a CT-Scan to check for a stroke (because of the hallucinations) and then an MRI for his back. The instant the MRI was done, and the doctors and technicians could see the massive MRSA infection on his spine, he coded and never regained consciousness. The doctor told us he had never seen anyone crash so fast.

The hospital seems so nonchalant about this, but my aunt who’s a nurse thinks that this is the CA-MRSA ... read more

0 replies...

MRSA boils
Posted by Ali
Last Reply January 14, 2006 at 16:44
Started January 13, 2006 at 18:41
Could someone please describe to me what an MRSA boil looks like? I have MRSA in my middle ear & mastoid bone, but so far no boils on the skin. However, my finace has some small circles(raised, with whitish heads-outer rim is more flesh colored than red) on his stomach and a couple on his upper thigh. He saw his Dr, who diagnosed him with a yeast infection(I'm sur he got it from me with all of these antibiotic courses)and the redness has gone away, but the few small bumps have not. They are not oozing or anything. ????

1 replies...

6 months of MRSA
Posted by Petrus
Last Reply January 13, 2006 at 22:18
Started January 11, 2005
Thank you for this site.

I caught MRSA from my wife, after she caught it by shaking hands with a parolee who caught it in a New Jersey jail.

I've had it four times since July, 2004. The first time was the worst.

This is what I have learned in my four "encounters"...

The body seems to "learn" to fight the bug somewhat. The boils in Round 1 of the bug were the worst -- huge, golf-ball-size jobs deep in the flesh of my buttocks. Afterwards, they were small and in different parts of the body. It's as though the previously-infected areas had T-cells "on alert" in them.

In Round 2, the bug took up residence in my scrotum. It was during Round 2 that I noticed that healed boils leave little "BBs" behind in the flesh, ranging in size from a pinhead to a marble. It takes a long, long time for the body to absorb these. There is no doubt in my mind that these "BBs" contain living bug colonies.

Also in Round 2, perhaps because the flesh of my scrotum was so badly infected, the ... read more

2 replies...

GRANDCHILDREN
Posted by CATHERINE
Last Reply January 11, 2006 at 15:12
Started January 11, 2006 at 03:47

WE HAVE HAD MRSA GOING AROUND OUR FAMILY FOR ABOUT 1 1/2 YEARS. 2 HAVE BEEN HOSPITALIZED AND ONE MAY END UP WITH SURGERY YET. MY QUESTION IS THAT I WATCH MY 4 MONTH OLD GRANDCHILD. HOW SAFE IS IT FOR HER TO COME OVER WHETHER WE ARE HAVING AN OIUTBREAK OR NOT?

1 replies...

MRSA/Staph infection
Posted by kelly
Last Reply January 10, 2006 at 15:27
Started January 5, 2006 at 16:21
I am intrested in knowing if any one out there belives that they got this infection from a surgical operation? That's what I think just happened to me after ORTHO. surgery. Any thoughts on this???

6 replies...

MRSA
Posted by Clotilde Rodriguez
Last Reply January 6, 2006 at 02:17
Started January 5, 2006 at 01:59
my fifteen day old grandson is in the hospital with MRSA. My daughter brought him because he had a fever, lump under his chin and it was very red. she was told it was Branchial Cleft Cyst and was put on antibiotic. Five days later, she was told he has MRSA and the now they put him on Vancomycin, but this has side effects. We don't know what to do. He's at Montefiore Hospital for Children in the Bronx, NY.

3 replies...

It just won't go away
Posted by Angi
Last Reply January 6, 2006 at 02:13
Started January 5, 2006 at 20:39
I've been battling MRSA since August of 05. I've been on several antibiotics including Vanco. I just finished that about a week ago, and once again, I am getting leasions. I don't know what to do and I don't know how to make it go away. Does anyone know how to beat this?

1 replies...

Zyvox
Posted by Kelley
Last Reply January 5, 2006 at 17:05
Started January 3, 2006 at 20:09
I have been perscribed Zyvox within the last 2 days (after 5 months of other antibotics that didnt work) but my out of pocket cost is going to be $811.52 with my insurance plan.

Is there a way to get this medicine cheaper?

3 replies...

Good News
Posted by Bishop
Last Reply January 3, 2006 at 20:03
Started December 11, 2005 at 18:37
I was diagnosed with MRSA about 10 months ago, the skin type infection. I was on Zyvox for sometime, whenever an outbreak would occur. Its been nearly 6 months and no outbreaks thus far. I thank God, because they are really painful. If your having trouble I would really insist on asking your Infectious Disease Doctor about Zyvox. Its very Expensive without a Prescription Plan, but the results are very positive. Be Well and God Speed in your recovery.

2 replies...

MRSA Discussion with Doctor
Posted by Nancy
Last Reply December 31, 2005 at 07:00
Started December 28, 2005 at 21:15
I had surgery on my foot in September. My surgeon did not like the look of my foot and placed it in a cast. Four days later I was in the emergency room with Cellulitis. I got a new surgeon. The medications were not helping. Tests revealed I had MRSA. I had 2 I&Ds and was sent home with a wound vac and vancomycin. One week later when I went to the surgeon for a check, he opened the wound, smelled it, and put me in the hospital for another I&D. The SED rate on me was 113 and the surgeon and the communicable disease doctor were seriously discussing removing my right foot at the ankle. They tried one more surgery when they found osteomyelitis in my heel bone. They drilled an 1 1/2" hole in the bone, left an open wound and sent me home with instructions to place a wick in the wound soaked in Saline and change it 3 times a day. I cannot tell you what the pain was like. But I did it and I have kept my foot so far.

My discussion with the communicable disease doctor left me conc... read more

1 replies...

staph bacteria/MRSA
Posted by mikkie
Last Reply December 31, 2005 at 06:58
Started October 25, 2005 at 08:28
Staph bacteria / MRSA
Started by Mikkie Posted: October 25, 2005 at 04:45
Myself and family have always been healthy and up until two years ago always resided in the uk, we now live in the uae - short term.
Both myself and my daughter started getting repeated boils in various areas and this was most distressign for us both and then having gone to the hospital for extensive tests, I learn that we are carriers of the stpah bacteria (mrsa) and now Im getting stye after stye, and its getting depressing.
Other than usign hot compress is there anything that we can use that does'nt involved popping pills and potions as Im into alternative meciines where possible.

Thanks
Mikkie



3 replies...

Treatment for MRSA
Posted by Nancy
Last Reply December 31, 2005 at 06:56
Started December 29, 2005 at 20:23
I was treated with Vancomycin for 5 weeks and had a wound vac on my open foot infection. I was not getting any better. The communicable disease doctor in Minnesota changed my antibiotic to Daptomycin. I have 5 1/2 weeks of IV treatments for 7 days a week.

My wound finally healed and I completed my treatment on Dec. 10, 2005. So far I have not had a recurrence but I will remain very watchful. I don't trust this disease and I want to be ready if it rears it's ugly head again.

1 replies...

not good news
Posted by catlin
Last Reply December 29, 2005 at 19:59
Started October 28, 2005 at 16:33
The sputum test came back positive for MRSA. How can they kill this if they won't go in and clean out abcesses in my abdomen and pelvis? There are only so many antibiotics that work, and I don't want to become resistant to them. I am over the fear, when the lung started acting up I experienced overwhelming fear due to hearing that this stuff eats holes in your lungs. I am afraid to start meds without getting to the source of the infection inside.

Would you be around loved ones and friends if masks are worn? I know they are not comfortable with that, and I have to respect their decisions. I would be afraid to be around me too.

9 replies...

2 1/2 year old son w/MRSA
Posted by Mende
Last Reply December 25, 2005 at 04:21
Started December 21, 2005 at 18:26
MY 2 1/2 year old son started having pain and tenderness around his ear, doc sent us home on Augmenten still not better 2 days later. were then sent for blood work and Ct scan sed rate at 63 and scan showed definate fluid but no abcess, told to keep on augmenten, two days later it is now worse and doc sends us to ENT specialest, he (ENT) feels it is a mastoid infection and needs to be treated with IV antibiotics, we are sent off to the hospital. Our doctor came in after 24 hours of antibiotics and thought the swelling looked better (sed rate was now down to 43) and was going to send us home luckily we convinced him to look in his ear and he saw the nasty pus coming out he sampled it and found out it was MRSA, it was then treated with clidamycin and rosefrin(sp?) Iv treatments and finally released 5 days later on oral bactrim.Pretty unbelivable as he had no fever, no absess, or rash or cut (the usual way i am told this presents) He is not a day care kid, or around health care workers... read more

2 replies...

Great News for USA!!!
Posted by Denise
Last Reply December 21, 2005 at 01:05
Started May 15, 2005 at 18:58
Tony Field, Chairperson of MRSA Support Group UK, is coming to the USA with his wife, Barbara, to help in our battle against MRSA!!! This is great news for our country! Tony Field is an MRSA survivor and has put considerable effort into the campaign against MRSA in UK. The booklet, "MRSA - A Patients Defence!" by Tony Field is now available by mail in the USA. To receive a copy, e-mail your address to drej424@yahoo.com.
Tony Field is also in the process of writing another booklet to address the issue of CA-MRSA. I'll post again when this is available. There is a great website at www.caercoork.com/orsa/treatment.html. This was created by a mom whose son has been battling CA-MRSA. Like me, she is not a medical professional. She is a mom whose family has been affected by this horrible bug.
If you would like to arrange an interview or speaking engagement with Tony, please post here or e-mail contact info to the above address.
Many thanks, Tony and Barbara!


9 replies...

MRSA - PVL
Posted by Siobhan
Last Reply December 18, 2005 at 14:04
Started November 28, 2005 at 05:09
PLEASE HELP! My Uncle is in the ICU with MRSA-PVL. He was first admitted with pneumonia but it quickly advanced and they finally tested the bacteria they found it to be the MRSA - PVL. The doctors have been giving him a multi-antibiotic treatment. They currently don't have much hope for him. He is on a ventilator and has had carbon-dioxde levels in the 100s! They also tried giving him an IVIG treatment (as in one case it was found to neutralize the bacteria). It didn't seem to do any good. They are suctioning him out regularly and they were percussing him. The doctor recently stopped the percussing as he doesn't think it will do any good. THey have also considered doing a surgery to remove some of the infected lung tissue. However, they say that he is not stable enough to try this. My uncle is 48 years old and very healthy. I guess now they are thinking that it is only a matter of time before his lungs give out and his CO2 levels get too high that his heart fails.

My question is... read more

9 replies...

Mrsa/Orsa
Posted by Lyn
Last Reply December 14, 2005
Started December 3, 2005 at 18:51
My son recently contracted Orsa after (or during) a surgery to implant a baclofen pump in his abdomen. He had a 2nd surgery to irrigate the infection out and was placed on a 6 week course of Vancomycin. Not 4 days after he finished the IV therapy the infection came back.....He just had a 3rd surgery (in less than 3 months) to remove the pump and went back on the Vanc. The docs are very blase about this infection. I'm concerned he will have this thing forever. He has Cerebral Palsy and is medically fragile to begin with. Am I being neurotic about this or do I have cause for concern?

1 replies...

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