MRSA Discussion Forum USA and Canada

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trying to help my son
Posted by lisa
Last Reply March 28, 2006 at 04:22
Started March 28, 2006
Hi there, I was woundering if anyone had any information about MRSA support groups or web sites for children and teens to go to that are dealing with MRSA???

1 replies...

symptoms
Posted by Cindi
Last Reply March 28, 2006
Started January 19, 2006 at 22:02
Im so happy to find this site. myself, husband and two small children have MRSA. I was told my daughter got it because of chemotheropy. We all have it in our nose. We are extreamly tired. We get the infections in our chest. as well as my daughter gets alot of sinus infections. I also feel like I have aged drasticlly in one year. I have noticed most people get boils. My question is these boils comming our way soon orcan we live with MRSA and not recieve boils. All the other sympoms seem to be the same tired, weak, and alot of antibiotics.



4 replies...

mrsa
Posted by tina
Last Reply March 26, 2006 at 17:14
Started January 15, 2006 at 23:45
I was wondering has anyone tried the silver biotics or allimax garlic with good results for mrsa.

3 replies...

mrsa blood test??
Posted by nyker
Last Reply March 26, 2006 at 17:01
Started March 22, 2006 at 06:00
I requested that my gen. practioner provide a blood test in order to see if mrsa is in my bloodstream. The doctor stated that a blood test for mrsa CANNOT be done unless I have a wound which can be cultured.

Can anyone tell me whether this is correct??

4 replies...

filled with questions
Posted by lisa
Last Reply March 26, 2006 at 16:34
Started March 24, 2006 at 19:41
HI there! I was woundering if anyone has heard of a vacination used for paitents that has had a prior case of MRSA given before surgery to prevent MRSA from comming back?

4 replies...

A WORD OF THANKS !
Posted by lisa in SC.
Last Reply March 23, 2006 at 22:41
Started March 21, 2006 at 18:47
I just wanted to say "THANKYOU" TO everyone who has helped to put this site together,to all who help give people some answers that doctors simply refuse to,To
all that share their personal nitemares,their pain,their struggles,their knowlage and their hope.My son got HA-MRSA in march 2005,In Dec.05 I got my first computer,never used one before,this first thing I did was type in my sons diagnios and it led me here,I thank God for that!Every day since ,I keep comming back here,and have read all 20 pages.I have been so angery for the last year as I watch my son struggle daily with the disabilities he now has because of a medical mistake, one that seems to me that should be avoidable and that would- be proper cleaning of surgical equiptment,cleaner hospitals and hand washing!I am learning slowly how to use this thing(computer)and am hoping that I can find a way in my area, SC. for people to listen to my son's story,the life changing damage that MRSA has had on him and our family,and... read more

2 replies...

MRSA when to know if its active again
Posted by Linda Austin
Last Reply March 20, 2006 at 15:09
Started March 18, 2006 at 22:44
Hello,
I've had MRSA 3 times in the past year. Each time required a pick-line and Iv Vancomycin for several weeks to clear it up. I had been undergoing breast reconstruction when I first got it and the last time was after they had put the permenant implants in. They had to wind up removing them and leaving the wounds open. This was done on Feb.13th and I still have open wounds the size of small walnuts. I have been off of the Vancomycin for 10 days now and I'm worried about it returning since I still have open wounds. Is there a way to know if it becomes active down the road. The Infectious desease doctor feels that the MRSA has caused my body to reject anything foreign (the implants were part silicone and the tissue expanders were plastic as well, and all the drain tubes I had that touched the skin caused it to blister and ooze. Any info would be appreciated. I guess that I'm just paranoid at this point. I'm worried about even doing my gardening this summer.

2 replies...

mrsa misdiagnosis and maintenance
Posted by nyker
Last Reply March 20, 2006 at 07:45
Started March 20, 2006 at 07:45
I was diagnosed with MRSA in Aug. 2004. I was likely a carrier since 2002, when I had oral surgery performed. Initially, the urgent care md thought my bulging leg wound was a spider bite. A culture wasn't taken (ubelievable since so many people are walking into urgent care centers with mrsa that's mistaken for spider bites) Keeflex (useless for MRSA) was prescribed, and the infection festered in my leg for at least 5 days.

I happened to have a visit to a dermotologist a week later and asked him to look at the gapping wound. He hit the roof; he couldn't believe a culture wasn't taken. He called the next day and told me to get to the hospital right away for stronger antibiotic.

Initially, my general practioner (nor any other md)did not mention this is basically incurable (at least for right now). I took septra for a month, and one month later had three more outbreaks. I was then placed on septra and rifampin, and my general told me I'd be on antibiotics about every 3 mo... read more

0 replies...

Colonization of MRSA
Posted by Allison
Last Reply March 19, 2006
Started March 16, 2006 at 18:32
I would like to know how many people out there are colonized with MRSA but have no symptoms ie boils? The specialist said that our daughter could be colonized all her life and it could never affect her or show any symptoms. The swabs in her nose are negative but her peri-rectal is positive. She has never had an open wound or anything like that. Any info would help.

Thanks.

2 replies...

MRSA
Posted by Carol
Last Reply March 18, 2006 at 22:52
Started March 18, 2006 at 21:04
What is the best medicine to treat with sucess MRSA. My Husband has it in his elbow and his whole lower are down to his hand swelled up like really huge. The Doctor gave him Septra DS Tablets the swelling went down but the elbow is still red and looks like pop-eyes elbow? Any sugestions as to what Antibotic that works good is? Has anyone use Tea Tree Oil on their in my case elbow with good results? I think maybe the doctor should drain the elbow? Its been about 3 weeks now since the discovery of MRSA which was done by taking some blood from the spot and sending it to the lab.Any suggestions given to me would be wonderful.
Thank you very much
Carol

1 replies...

What are drug companys doing?
Posted by joe
Last Reply March 13, 2006 at 22:33
Started March 3, 2006 at 18:06
I seen on the news that drug companys are not making anymore new antibiotics. Because they do not make any money on them. The people who take them get better. unlike people who have athsma take take a pill everyday for the rest of their life. So the people who have MRSA are up the creek without a paddle! WHAT CAN BE DONE ABOUT THIS! any sugestions?

7 replies...

different therapies
Posted by Dyana
Last Reply March 8, 2006 at 12:19
Started March 6, 2006 at 12:48
I've noticed some people getting upset when other people suggest soemthing that is not a typical hospital procedure. First of all, let's stop the useless bantering and Keep an open mind...

People have lost faith in the medical system, but that's all we've got, but that doesn't mean they are always right! We all KNOW that to be true now!

Attacking anyone is not going to help anyone.
There may be merit to other treatments that have not yet gone through the long regimen of clinical trials. The questions as to why it's not used in hospitals is easy.

1) MRSA is becoming epidemic rapidly, faster than FDA can do trials to approve...
2) Doctors cannot prescribe treatment if it is not an FDA approved device (like ozone treatments), they could lose their license.
3) You have to work within the system and the system is based on drug therapies and surgery.
4) Researchers are working feverishly to come up with new medications every year as the epidemic rapidly increases in nu... read more

2 replies...

mrsa: can anyone suggest anything to help?
Posted by tracy
Last Reply March 6, 2006 at 22:13
Started March 3, 2006 at 17:29
i was watching a rpogram on t.v. about this superbug. that was attacking the football players and killing many people... i did not realize at the time it was going to be very useful information..my mother is a diabetic and she is in her 60's she stumped her toe and it bruised her toenail.after about week it was bothering her terribly so she went to see the doctor he said it was infected at the bed of her toenail.so he removed it. and 2 weeks later it started growing back a week after that she back to the dr. because of the pain. he told her they were going to have to amputate her toe below the toenail. they did and after several test and being in the hospital for 2 weeks not getting any better and in turn getting worse they hadto go back in and remove the whole toe they told us(family)that she had a bug they were not usre what it was but we could not touch her without gloves and protective washing of the hands afterwards. the nurse that was on duty says she did not know what it was ... read more

6 replies...

Just a thought to share..
Posted by Dyanablueeyes
Last Reply March 6, 2006 at 21:54
Started March 6, 2006 at 03:37


Just a thought I shared with Kate, and thought it would be good to share with all of you, maybe even a researcher who can do something about it?

Sometimes, I wonder, if this bacteria is so strong, and kills all types of cells, why couldn't we control it, inject it into a cancerous tumor, then throw Vancomycin on it after the tumor is gone. It comes on so fast, and eats through tissue. The Universal Law of Polarity states that there are two sides to everything- an opposite, a yin to the yang, dark to light. What if the whole reason we are going through this is to learn to prevent another disease? Rat poison is used to thin the blood in a drug called Coumadin? I am not a researcher, but I always try to find the good.

Who knows? I believe there is a bigger picture, we can't always see unless we choose to step outside our little boxes, and see the view God sees.

Bright Blessings to all... thanks for letting me share...
Dyana


1 replies...

mrsa
Posted by cape breton
Last Reply March 2, 2006 at 17:40
Started August 31, 2005 at 05:49
does anyone no aboutany cases of inproper health care with mrsa that were in the jails

3 replies...

CA-MRSA
Posted by Denise
Last Reply March 2, 2006
Started March 11, 2005 at 16:32
I have 2 daughters, 3 & 5 yrs. old. Both have been diagnosed with CA-MRSA in their ears. My older daughter had it for a long time before she was diagnosed. After her diagnosis, we went to the Pediatric Infectious Disease Unit at Columbia Presbyterian. She was given a 5 week courst of Zyvox, which was effective. Thank God, she's been well since October. My entire family was tested for MRSA and noone else had it. I was told that my daughter had contracted MRSA from the community and there was no way to tell where she had gotten it from. On her ENT's advice, I had ear tubes put in my younger daughter. 3 months later, she came down with CA-MRSA in her ears. Again, I've been told that she must have gotten it in the community. Now I read that in UK, CA-MRSA has been spreading in the hospitals. What can we do to increase awareness about this terrible bacteria? The USA should have mandatory reporting of this. Any suggestions?

5 replies...

My son has MRSA again......
Posted by Linda
Last Reply March 1, 2006 at 22:29
Started September 28, 2005 at 13:29
This is the 2nd time my son has been diagnosed with MRSA in 2 months. He's been getting the painful boils and is now on clindamycin which seems to be working, as it did the first time he was on it.

It started with one neighbor boy this summer (which was never diagnosed as MRSA as a culture wasn't taken), spread to another neighbor boy, who was treated with 2 rounds of antibiotics which didn't work before it was confirmed he had MRSA. Then my son started with the painful boils and was put on a round of antibiotics which didn't work. At my insistance, he was cultured and found to have MRSA.

Now, another neighbor boy just had a painful boil that looked exactly like the other boys boils. We urged the parents to take their son to the Dr., but as far as I know they didn't. However, they did pop the boil and had their son soak in a tub.

When will this stop? All the boys play together frequently and I'm worried for all of them, and also for others that come in contact wit... read more

5 replies...

Reoccurance, Prevention, Support, & Statistics
Posted by Dyana
Last Reply March 1, 2006 at 16:57
Started March 1, 2006 at 16:57
I have had quite a few responses from my previous posting about how to get this under control, and the fear associated with reoccurance which happens about 80% of the time within the first year. By working in a Holistic Medicine Clinic, we have both MD's and Oriental MD's on staff.

Make people understand the severity of what you are going through. When someone says cancer, people have empathy right away, when someone says MRSA, people have ignorance. Yet, people are dying from it quickly and unexpectedly-just like cancer.

Here are some NATIONAL STATISTICS. There were 2.5 million hospital acquired infections in the U.S. last year alone. Over 100,000 people died from them. Those are pretty strong statistics especially when you see that the numbers are rising and have been rising for decades. MRSA is getting more and more resistant to even Vanco, which is scary since that is the strongest antibiotic we have out there right now! Researchers are trying to keep up with the r... read more

0 replies...

MRSA
Posted by Heather
Last Reply February 28, 2006 at 23:45
Started February 23, 2006 at 20:23
My 3 yr old boy has MRSA They first said it was a spider bite. He now has had 8 serious outbreaks. Never got it in a cut but still has them. I am lost I do not know what to do He has been hospitalized five times and no one seems to know what to do. We wash in hot water I do the bactraban up the nose we bathe in chlorine water but nothing seems to ge trid of this I do not know any one else dealing with this. I am reading everyones e-mails and wonder why so little research is being done about this. I am confused any help or any ones thoughts would be helpful.

3 replies...

FLARED UP AGAIN
Posted by Christina
Last Reply February 27, 2006 at 08:52
Started February 25, 2006 at 20:57
I was diagnosed with MRSA about 3 or 4 weeks ago and I was put on CLINDAMYCIN for it. It is on my leg. The medication helped it alot...cleared it up . But then after I had finished it ...it had flared up again. The doctor will not give me another percription for it because he thinks it should heal on its own. It is red, bumpy, oozy, and bleeding. That was the way it was before it started the medication. If you have any advice email me at scgirl29223@aol.com

2 replies...

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